May is Lyme Disease Awareness Month Blog Post #12: The Politics, Denial and Lies about Lyme Disease, Part III.

Here is a great 21 minute video about Lyme Disease and some celebrities that have it and the controversy around it.

Fox News Lyme & Reason

And more from the Blogger Read Between the Lyme

You might be surprised at how many celebrities have it.  Here are a few:

Ally Hilfiger

Kris Kristofferson Misdiagnosed as Alzheimers

Shania Twain

Amy Tan

Avril Lavigne

Michael J Fox diagnosed with Lyme 3 years before Parkinson’s.  Suspicious right? 

And many more……..


PREVENTION IS THE ONLY CURE

May is Lyme Disease Awareness Month Blog Post #11: The Politics, Denial and Lies about Lyme Disease, Part II.

A lot of people are coming forward to expose the lies our government is saying regarding Lyme Disease.  As a Lymie you try to ignore the lies and how the poorly the doctors treat you because you really just want to feel better and have you life back.

Here are a variety of links so you can read about the politics, denial and lies about Lyme Disease and decide for yourself.

Lyme Crime Video

Under Our Skin

The CDC’s Greatest Coverup

Plum Island

Truth Cure 

Lyme Wars

Plum Island Experiments

CDC says few people suffer from Lyme Disease

You may think that everyone including myself are conspiracy theorist but think about this:

  • The people on the CDC committee that decide the Lyme Disease testing and guidelines have conflicts of interest.  Most people on the committee have ties to big pharmaceutical and insurance companies.  Why don’t they change the committee if there no cover-up.  
  • The people at IDSA have conflicts of interest too.
  • Why does the government prosecute Lyme Literate MD’s even though their patients get better.
  • Why does the government ignore studies that proof Chronic Lyme Disease Exists?
  • If there is science to prove the infection(s) is still in your body then why doesn’t the CDC and IDSA change their information.
  • Why is there so much controversy?
  • Why won’t the CDC talk about it?  
  • Why are so many people (possibly millions) having the same symptoms and doctors just say they don’t know why?

If doctors take an oath to do no harm then why are they harming so many patients by giving up on them? Why are they not helping people?  Why do they think so many people need a psychiatrist?  Why aren’t these people held accountable?


People are dying from Lyme Disease every day and the government refuses to help.  

Here is the mission of the CDC: “CDC works 24/7 to protect America from health, safety and security threats, both foreign and in the U.S. Whether diseases start at home or abroad, are chronic or acute, curable or preventable, human error or deliberate attack, CDC fights disease and supports communities and citizens to do the same.”

They are not meeting their mission.  They do not protect America.  


 

 

 

May is Lyme Disease Awareness Month Blog Post #5 What are Symptoms of Lyme Disease, PART I?

Lyme Disease can effect all parts of your body so it can have a wide range of symptoms.  It can get into your brain, joints, heart, lungs, muscles and nervous system.

Symtpoms MEme

First symptoms of Lyme Disease:

  • Bulls eye rash called erythema migrans which most people don’t get.
  • Flu-like symptoms which disappear and then the infection becomes dormant

Some early symptoms may also include fatigue, fevers, joint pain and sleep problems.  But everyone with Lyme is different.

Chronic Lyme or Late Stage Lyme Disease is when the infection is no longer dormant and has invaded the body everywhere and then finally more symptoms appear.  This is where the list of symptoms become endless.  They say Lyme will become full blown when a person goes through a major traumatic event in their life.  That’s what happened to me.  I believe I got Lyme when I was young because I have many illnesses my entire life.  And, I believe the Lyme really appeared when my mom got diagnosed with cancer and 6 months later died because that is when my migraines,  depression and constant nausea started.  

My Symptoms of Lyme Disease:

  • Migraines – Daily
  • Migratory joint pain.  It means you have pain in your joints that jumps around to different joints.  Sometimes it feels like someone is ripping your joint open and then the next day it’s a different joint.  
  • Burning Pain – Feels like your body is on fire.  It’s all over.  Arms, palms, hands, fingers, legs, calfs and bottom of feet.
  • Nausea and vomiting
  • Tremors  – really bad neurological problem that causes your body to shake.  It is especially bad when the burning pain is bad.
  • Muscle aches
  • Electricity shooting pain.  This is horrific!  I feel like someone has plugged my body in an outlet.  
  • Insomnia.  Trouble falling asleep and constantly waking up in the night. 
  • Crippling Pain in hands, fingers and legs.  It feels like my hands and legs have stopped functioning and I can’t hold something or walk at times.
  • Severe anxiety
  • Depression
  • Eye Twitching
  • Mood swings and irritability.  Seems worse with more pain.
  • Severe fatigue
  • Low grade fever
  • Memory loss and forgetfulness
  • Brain fog
  • Stomach pain and cramps
  • Breathlessness called “Air Hunger” which feels like you can’t get oxygen in.  Very scary.  You become completely out of breath just going from your bed to the bathroom.  Having your own pulse oximeter helps you relax and make sure you are getting enough O2.
  • Hearing problems
  • Panic attacks
  • Itching – mostly head, ears, eyes and face but sometimes all over body itching.
  • Heart murmur 
  • Light and sound sensitivity
  • Lightheadedness
  • Neck pain, stiffness and cracking
  • Poor concentration
  • Sparklers shooting at my hands, arms and legs.  Feels like someone is holding a sparkler near me and the sparks are sharp when they hit me.
  • Weigh gain
  • Thyroid problems
  • Overall body weakness
  • Chronic dry lips
  • Digestive issues or upset stomach
  • Chronic chest cough
  • Anger
  • Constant nasal issues and allergies
  • Sweating.  This could be day or night sweats.
  • Rage
  • Menstrual and PMS problems
  • Sleep paralysis and nightmares
  • Teeth grinding
  • Sensitivity to heat
  • Ear pain
  • Facial Paralysis.  Luckily I’ve only had this once.
  • Tingling.  Sometimes I get random tingling in different parts of my body.

So those are just my symptoms but the list goes on and on of the different type of symptoms a person with chronic Lyme Disease can have. 

Here is a Lyme Symptom Checklist that Dr. Joseph Burrascano created to help see if someone has Lyme Disease.

Here is aan MSIDS Questionnaire by Dr. Richard Horowitz to evaluate if you have Lyme Disease.

The Lyme Research Alliance also has a good symptom checklist

Remember even if you don’t test positive for Lyme Disease you still may have it.  A clinical diagnosis can be made by a Lyme Literate MD.


Previous Posts in this Series

May is Lyme Disease Awareness Month Blog Post #4   The Great Imitator

May is Lyme Disease Awareness Month Blog Post #3 What is Lyme Disease?

May is Lyme Disease Awareness Month Blog Post#2: Prevention is the only cure!

May is Lyme Disease Awareness Month Blog Post#1 Lyme Disease Awareness Month Begins

 

 

May is Lyme Disease Awareness Month Blog Post #4 Why is Lyme Called “The Great Imitator”

Lyme Disease has been called “The Great Imitator” because it mimics so many other diseases.  And because the symptoms mimic so many other disease it is often misdiagnosed.  

Because most doctors are not educated in Lyme Disease they frequently misdiagnosis their patients.  In fact, most doctors don’t even consider a Lyme Disease diagnosis. They may test for it but they are not educated in the testing and therefore when a patient test shows up negative they say they do not have Lyme Disease.

Hopefully at some point in the future

  • medical students will be educated properly
  • all medical specialities will be educated in Lyme Disease
  • testing for Lyme Disease will be more accurate
  • testing will be easily available for all patients
  • testing will be covered by medical insurances
  • medical professionals won’t dismiss it as possible diagnosis when the patient doesn’t remember getting bit by a tick.  
  • Medical professionals will stop telling patients that they are making up the symptoms and send them to a psychiatrist.  Because believe me, YOU CAN NOT MAKE UP THESE SYMPTOMS
  • Medical professionals will stop saying they don’t know why you have these symptoms and just write prescriptions to mask them.
  • Treatment for Lyme will become easier to get and more effective.
  • Big pharma will not be in control of our medical system
  • CDC will stop with the lies about Lyme Disease
  • A cure will be discovered!

So why does it matter if you get a Lyme Diagnosis or not?  Why does it matter if you get a diagnosis of MS, ALS, Bipolar, Parkinsons, Alzheimers, Chronic Fatigue Syndrome Depression, Chronic Migraines or Fibromyalgia instead of Lyme Disease?

Lyme Disease can get into your brain, joints, heart, lungs, muscles and nervous system.  It can effect all parts of your body so if you get a proper diagnosis you may be able to treat your condition.  Unfortunately right now you must see a Lyme Literate MD (LLMD) to get a proper diagnosis.  But because it’s “The Great Imitator”  seeing an LLMD is the only way to rule Lyme Disease out. Your regular MD or the specialist you go to now CAN NOT rule out Lyme Disease as the cause to your symptoms.

It all goes back to the same thing I said in a prior blog post.  Doctors are not trained to determine the cause of symptoms.  They are trained to give a diagnosis in their field of expertise and give pills to mask the symptoms.  If you want to know WHY you have these symptoms you should see an LLMD.  You should especially see an LLMD if you are given multiple diagnoses.  

If you don’t want know why you you started losing you memory or why you started getting tremors then just accept the diagnosis you have.  If you don’t want to know why you started having pain or why you have brain fog or are suddenly completely exhausted then just accept the diagnosis you have.  I didn’t!  I did not accept Fibromyalgia and a variety of other things as my diagnoses.  I knew something was really wrong.  I didn’t even have the typical tigger points for a Fibromyalgia diagnosis but they gave me that diagnosis anyways.  NO!  I WOULD NOT ACCEPT IT.  I wanted to know WHY!  I had doctors tell me I didn’t need to go to a Lyme specialist.  Once a doctor told me that I didn’t trust anything they said.  How can someone be so sure you don’t have something when they are so uneducated about it?  

There are over 300 disease that mimic Lyme so you might consider seeing an LLMD if you have any of the following medical conditions.

  • Fibromyalgia
  • Chronic Fatigue Syndrome 
  • Multiple Sclerosis (MS)
  • Psychiatric Disorders
  • Lupus 
  • Rheumatoid Arthritis 
  • Complex Regional Pain Syndrome (CRPS)
  • Amyotrophic Lateral Sclerosis (ALS)
  • Any Autoimmune Disorder
  • Chronic Migraines or other headache disorders 
  • Juvenile Health Problems like arthritis, memory loss, or other pain
  • Alzheimers
  • Pediatric Autoimmune Neuropsychiatric Disorders (PANDAS)

If you have are given several diagnoses or any of the above diagnoses and you have some of these listed below you may want to consider Lyme Disease as the cause.

  • ADD and ADHD
  • Autism Spectrum Disorders
  • Thyroid Disorders
  • Sleep Disorders
  • Memory Problems
  • OCD
  • IBS
  • Chrons’s 

List of over 300 diseases that mimic “The Great Imitator”

Another list of over 300 diseases that mimic Lyme Disease


Previous Posts in this Series

May is Lyme Disease Awareness Month Blog Post #3 What is Lyme Disease?

May is Lyme Disease Awareness Month Blog Post#2: Prevention is the only cure!

May is Lyme Disease Awareness Month Blog Post#1:  Lyme Disease Awareness Month

May is Lyme Disease Awareness Month Blog Post #2 Prevention is the only cure!

#1:  BE AWARE OF WHAT CAN BITE YOU

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#2:  PROTECT YOURSELF WHILE OUTDOORS (INCLUDING GARDENING)

#3:  PERFORM TICK CHECKS

protect_yourself.jpg


#4:  LEARN WHAT TO DO IF YOU GET BIT AND SAVE YOUR TICK FOR TESTING

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SEND THE TICK TO THE BAY AREA LYME FOUNDATION FOR TESTING

Bay Area Lyme Foundation test for the following six pathogens:

  • Borrelia burgdorferi, which causes Lyme disease
  • Borrelia miyamotoi, which causes tick-borne relapsing fever

  • Babesia microti, which causes Babesiosis

  • Anaplasma phagocytophilum, which causes anaplasmosis

  • Ehrlichia chafeensis, which causes human monocytic erhlichiosis

  • Rickettsia rickettsii, the agent of Rocky Mountain Spotted Fever


#5:  OPTIONS IF YOU HAVE BEEN BIT

Be proactive or take the wait and see approach.  Your decision.

Proactive would mean going to see a Lyme Literate MD (LLMD) for consultation. Not your regular MD.  Regular MD’s are not educated in Lyme Disease, co-infections and testing.  The International Lyme and Associated Disease Society and Lymenet.org have a LLMD finder for your area.

Wait and see approach:  Most people don’t get a rash but that doesn’t mean you don’t have an infection.  Some people get flu-like symptoms.  Meaning they get fatigue, stiffness, sleep pattern changes, a fever or irritability.  Once the rash and/or flu like symptoms go away that does not mean you do not have an infection.  It may mean that the infection is in the dormant stage.  If you have a rash you should see an LLMD.  If left untreated Lyme will become chronic and problems will develop later in life.

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Previous Post in this Series

May is Lyme Disease Awareness Month Blog Post #1  Lyme Disease Awareness Month Begins