Lyme Disease Awareness: The Lyme Cryme

Today is the last day of Lyme Disease awareness month so I thought I’d share a post about Lyme Disease. Most people don’t know anything about Lyme or they think it’s no big deal and easy to treat. It’s a bacterial infection so just take antibiotics right? WRONG!

Lyme is very complicated. It is easy to get and difficult to treat. Unfortunately most medical professionals (probably at least 90%) are not educated in Lyme Disease and therefore, most people go undiagnosed or misdiagnosed for years or decades. I was undiagnosed for 20 years. I had a daily migraine for 20 years and a some other symptoms that I now know was all caused by Lyme, co-infections , mold, heavy metals and more.

Lyme is not one infection. Lyme is a huge umbrella of issues. It includes bacterial and viral infections, mold illness (CIRS), toxins, gut issues, genetics, EMF’s and more. The list of Lyme symptoms are endless and vary from person to person. All these issues can lay dormant for years or even decades and appear when a person has a major trauma or stressor in their life. Even, having a baby or a surgery is a trauma to a persons body and can bring out dormant infections.

The main reason people being misdiagnosed or undiagnosed is the testing is inaccurate. Below is a long video with a whistleblower talking about what is called the Lyme Cryme. You can also check out Truth Cures. The video is basically showing the fraud the CDC and Big Pharma committed. They wanted to make money on a vaccine so they falsified the Lyme testing to eliminate 85% of people with neurological Lyme. So 85% of people that would have tested positive for Lyme before the vaccine would now test negative. The vaccine actually ended up giving people neurological Lyme and was pulled from the market. Now the doctors use this useless test to determine if a patient has Lyme or not. Interesting part is I have read many articles that state you can not vaccinate against Lyme because of the type of bacteria it is. It’s crazy! The sad part is the patients are the ones that suffer. In fact, a mom of a Lyme warrior who was following my page just informed me that her daughter died after 3 years of fighting. Her original false diagnosis was ALS. I don’t know her full story but people die from this disease everyday and no one is doing anything about it.

Key points to know:

  • A negative test does not mean you do not have it.
  • Do not believe any regular doctor that says any of the following:
    • Lyme does not exist in your state. False!
    • If you don’t remember a bite then you don’t have it. False!
    • If you didn’t get a rash you don’t have it. False!
    • Your test was negative so you don’t have it. False!
    • If you had a rash and got a short course of antibiotics you are cured. False!
  • A rash is 100% confirmation that you do have Lyme and co-infections.
  • Most people don’t get a rash.
  • Over 70% of people become chronic even after a short course of antibiotics.
  • Most people don’t know they even been bit.
  • Lyme can be transmitted by ticks, fleas and mosquitos.
  • Lyme and co-infections can be transferred from mom to baby.
  • The USA blood supply is infected. Currently only one state in the country tests for babesiosis which is just one of the Lyme co-infections.
  • There are over 300 Strains of Borrelia burgdorferi (Lyme) worldwide. The useless ELISA blood test is only testing for one.
  • Most regular doctors do not test for co-infections.
  • There is no cure for Lyme.
  • If someone with Lyme says you have it BELIEVE THEM! You probably do.

Our medical system in the USA is so backwards. It is for-profit system and everything is based on making money. They do not do research to help people. They do it to develop a drug to sell to make money. Doctors are only trained to review symptoms and give a label they call a diagnosis. They are not trained to determine the cause of symptoms. Sure if you have a common acute illness like a sinus of bladder infection or you need surgery then the medical community can help you. But they can not help people with chronic illnesses. They don’t want to. They need customers for life. Like I said, it’s all about money. Don’t even get me started on the Chemotherapy scam.

A true diagnosis is when you know the root cause of your symptoms. If you don’t then you don’t have a real diagnosis. Ask your doctor what is causing your symptoms and if they say the following go to a Lyme Literate doctor. You can find one here.

  • We don’t know what is causing your symptoms
  • It’s genetics
  • Some people just get these symptoms for no known reason
  • The only thing you can do is manage your symptoms with medications

Everyone with the following needs to be properly evaluated for everything under the Lyme Umbrella. The only way to do that is to see a Lyme Literate doctor. There are special labs that test for Lyme and co-infections but Lyme is a clinical diagnosis. There are even special doctors that test for mold illness (CIRS). Unless you have seen a Lyme Literate doctor you can not say you do not have it. If you want a chance at healing and possibly getting rid of your symptoms see a Lyme Literate doctor. It does not mean you have to treat with them but they are the only type of doctor that can rule out Lyme.

  • Amyotrophic lateral sclerosis (ALS)
  • Multiple Sclerosis (MS)
  • Chronic Fatigue Syndrome (CFS/ME)
  • Chronic Migraine
  • Depression
  • Anxiety and Panic Attacks
  • Bi-Polar
  • Any mental health issues
  • Parkinsons
  • Fibromyalgia
  • Alzheimer’s
  • Rheumatiod Arthritis (RA)
  • Lupus
  • Anyother label with no known cause
  • Autism
  • ADD, ADHD
  • Crohn’s and Colitis
  • Anyone with multiple labels

There are many stories of people given these above labels that actually had lyme and have completely healed.

There are causes to all symptoms

Here is a great story of a 17-yr old that was diagnosed as on the Autism spectrum when he was 18-months old. All his issues started after a vaccine. There are many stories similar to his and these stories need to be shared. His mom was a Naturopathic Doctor and was determined to find the cause. She did and now his symptoms are now all gone. TeenLymeHub – Lyme & Autism

I was undiagnosed for 20 years. I had a chronic daily migraine for 20 years and was told there was no known cause and some people just get migraines. I was also told it’s just genetics. Getting the Lyme diagnosis allowed me to treat the causes and heal. Getting a diagnosis sounds great but the healing journey is hell and not one treatment works for everyone. Unless you have Lyme you can’t even comprehend the level of pain and suffering. I was so debilitated that I felt I would soon need a wheel chair to get around. I was not believed by the medical community. I was lied to, bullied, disrespected, given many wrong “diagnoses” and then told by them I just need psychiatric meds. I was also told several times I did not have Lyme.

My 3 main treatments were Hyperthermia in Germany, Ozone Therapy and DNRS by Annie Hopper. You can read my blog for more details. Happy Healing!

Check out the Lyme Cryme video and get the facts yourself.

The Lyme Cryme Video

Lyme Disease Awareness 2018

Today is the last day of May so I am doing this post to raise awareness for this horrific, debilitating and potentially fatal disease.

Here are important facts about Lyme Disease

  • A negative test does not mean you do not have Lyme Disease (no matter how many times they run it).  Testing
  • Lyme is commonly transmitted by ticks that are as small as a poppy seed.  And it has been shown that there are other ways to get Lyme.
  • You do not need to have a bulls-eye rash to confirm Lyme.
  • Common sign of Lyme after being outdoors ANYWHERE is getting flu-like symptoms.
  • Your regular doctor is not educated in Lyme and neither are most infectious disease specialists. Lyme Literate (LL) Doctors are the only qualified people to determine whether or not you have Lyme. LL Medical Doctors, LL Naturopathic Doctors and Lyme Literate psychotherapists exist. See Ilads.org for referrals.
  • Lyme is a clinical diagnosis because testing is inaccurate.
  • Do not believe anyone that says Lyme does not exist where you live.  
  • Lyme is easy to get and hard to treat. 
  • If you get a bulls eye rash and get antibiotics right away you still may have long term symptoms.
  • Lyme is a spiral bacteria that can work it’s way into all tissues and organs inthe body so the list of symptoms and damage to the body is never ending.  Part I
  • Lyme is not one infection.  It is an umbrella of infections and illnesses.
  • Chronic Lyme Disease DOES EXIST!
  • Alternative/Naturopathic medicine is necessary to heal Chronic Lyme and majority is not covered by insurance. Antibiotics are not the best option for Chronic Lyme but a long course is necessary if caught early.
  • Sadly, Lyme treatment is hell!

 

PREVENTION IS THE ONLY CURE

Lyme Disease is vastly underreported in the USA because of the amount of people undiagnosed and misdiagnosed. MD’s are taught by big pharma in medical school to give a “diagnosis” based on symptoms and prescribe pills to manage those symptoms. They are not trained to determine the cause.


I naively believed the “Top” Headache Specialists for 20 years that said there are no known causes to chronic migraine and some people just get them every day. I was told I just have to manage them with abortive and preventative medications. When nothing worked and I got to the last of the available pharmaceuticals I was left alone to suffer. I now know the truth and the fact that there are many causes to chronic migraine.

Naturopathic and Alternative medicine was the only option for me to heal and 90% was not covered by my insurance. 😢 Sadly, people in the USA go broke trying to get healthy.


If you have any of the following conditions please consider Lyme Disease. Especially if you have been told more than one of these conditions. See my section on testing mentioned above.

  • Chronic Migraine
  • Fibromyalgia
  • ALS 
  • MS
  • Alzheimers
  • Anxiety
  • All mental health issues. Yes Lyme infections can cause depression, cyclothymia, bi-polar and schizophrenia. Those spirochete get in your brain.
  • Chronic Fatigue Syndrome (also commonly caused by CIRS/Mold)
  • Rheumatoid Arthritis
  • Lupus
  • Parkinson’s
  • Any illness that has no known cause
  • If you are told your symptoms are “all in your head”

Wouldn’t it be worth checking into Lyme it if you could heal and get your life back. How amazing would it feel to have symptoms gone? Stop accepting a “diagnosis” and being told you will never get better because there is no cure and we can only manage your symptoms.


You can heal from Chronic Lyme!!

If you do have Chronic Lyme disease and are not getting better please consider

  • Chronic Inflammatory Response Syndrome (CIRS).  Commonly caused by mold.
  • Dynamic Neural Training System (DNRS

The common phrase among Lymies.

You won’t get it until you get it.

Chronic Lyme Disease: Life with a Chronic Illness

I recently came across this great video of people describing what it is like living with Lyme Disease.  It’s really hard for “healthy” people to understand and they say..

You don’t get it until you get it.

This is so true.  You can not even in your most vivid imagination comprehend how horrific, debilitating, painful and disabling this disease can be.  This disease is worse than cancer.  Yes it is and here is why:

  • You get zero support from the medical community because our own government denies Chronic Lyme Disease exists.
  • You are told your symptoms are made up and “all in your head”  and you need a psychiatrist.  You can not make up these horrific symptoms!
  • There is no protocol to heal and it is a do-it-youself disease.
  • 90% of treatments are not covered by insurance so you can go broke trying to heal.
  • You can die from Lyme Disease.  Lyme Disease and Co-infections can get into every organ and tissue in your body and can cause everything and anything.
  • Your friends and family may not believe you are even sick.
  • You doctors will tell you you have XXX and say there is no known cause for what you have.   So you are really only getting a name for your symptoms and not a true diagnosis.  

Everyone in this video has Lyme Disease.  They have all received many other wrong names for their symptoms over the years.  A true diagnosis is when you determine the CAUSE of your symptoms.  Please leave any doctors that say you have MS, ALS, Fibromyalgia, Parkinson’s, Chronic Fatigue Syndrome, Chronic Migraines, Alzheimers, Mental Health Issues and anything else unless you are given a cause and treating the cause.  If you are just taking medications to mask symptoms or to slow the progression you are not treating the cause.   

I was misdiagnosed for 20 years.  I was told:

  • some people just have migraines.  
  • oh your mom had some so that’s why you have them.
  • I don’t know why you have a migraine every day.
  • there isn’t a known cause for migraines.
  • it’s a neurological disease.

ALL WRONG!!!  You do not just wake up one day with a migraine and it doesn’t go away for decades.  Just because my mom had some does not tell me why I do.  Just because those doctors didn’t know why I had one doesn’t mean there is not a reason.  

History will look back on Lyme Disease 30 years from now and it will be the biggest lie, fraud and criminal act committed by the medical community ever!

I’ve been sick for 22 years.  I got lyme at least 40 years ago or was born with it and prevention is the only cure.  You must protect yourself every time you go outdoors.  One tiny bite can ruin your life.

Disappearing From Society – a look into Life with Chronic Illness

 

 

 

 

 

 

I have lost all faith, trust and confidence in our medical community.

Why?

Because the medical doctors have failed me for over 20 years.


I have been 

  • disrespected,
  • dismissed,
  • treated like a drug addict,
  • bullied,
  • lied to,
  • told I can’t be a patient anymore because I could not drive an hour to my appointment with a level 8 migraine and throwing up, 
  • told I was just too stressed and that’s why I had debilitating symptoms,
  • told I need psychiatric medications when I was debilitated in pain, and
  • misdiagnosed for 20 years!

WAKE UP MEDICAL DOCTORS!!!  

There is a cause to all symptoms!

YOU ARE NOT EDUCATED IN LYME DISEASE!


You are not trained to heal any chronic illness!

You are only trained to give a label to symptoms and give pills to manage them.  The label is not a true diagnosis.  Determining the cause it the true diagnosis.  


Medical doctors are taught false information about Lyme Disease and Co-infections and that needs to change.  

All physicians need to stop dismissing Lyme as a possible diagnosis. The unreliable CDC recently up there estimate from 30,000 new cases a year to 300,000. However, because it is misdiagnosed it has been estimated that the number is closer to 2,000,000 new cases each year based on the number of misdiagnosed and undiagnosed patients.  


LYME IS THE NEW AIDS

#AIDS2.0


It does not matter

  • that a person does not remember getting bit by a tick
  • if they did not get a bulls-eye rash
  • that the test you did came back negative
  • that they live in California or any state for that matter

If you thought your patient had a heart or nerve problem you would send them to that particular specialist. So, please send patients to a Lyme specialist instead of telling them they need to see a psychiatrist. And stop giving everyone a Fibromyalgia diagnosis because there is a CAUSE to their pain.

Lyme is extremely EASY to get

and

extremely difficult treat once it becomes chronic.

There was only 1 doctor in 20 years that actually said I don’t know what is wrong but I’m going to try and figure it out. That doctor didn’t just give me a diagnosis and say goodbye. That doctor believed my pain and debilitating symptoms.


You may not think you do not have Lyme but you have a high probability of having it if you suffer from chronic migraine or have any mental health issues.

There is a cause to your symptoms!

The “headache” specialists failed me for 20 years.  They NEVER tried to figure out the CAUSE.  They would just say “I don’t know why you have a migraine everyday”  or that migraine is hereditary.  I went to “top” headache doctors and they are clueless. They only give pills to abort a migraine or pills to take daily to prevent them.  I believed them!  I was clueless and naive myself.  I was taught to trust medical doctors.  I was wrong to trust them and I spent 20 years suffering for no reason at all.  

I cured my daily migraine of 20 years!

Lyme testing is inaccurate the only doctor that can rule it out is a Lyme Literate MD.

There are many viral and bacterial infections that do cause migraines and any mental health disorders.  So ask why you have these symptoms and if they don’t have an answer see a different doctor.  

****You will not get it until you get it****

May is Lyme Disease Awareness Month Blog Post #26 Spread the Word!

Lyme Disease is a scary Pandemic!

pandemic

Lyme Disease is one of the fastest growing infectious diseases in the country and most people don’t know anything about it.  Everyone has heard of the Zika virus but that is nothing compared to Lyme Disease.  Look at the difference in cases and funding and remember the estimate number of cases of 329,000 is based on reported cases.  It’s estimated closer to two million.  

Lyme vs Zika funding

The NIH has a larger budget for Headaches than Lyme Disease and the funny thing is most people with Lyme Disease have headaches and migraines.

NIH headaches and lyme

There are more cases of Lyme Disease reported each year then HIV, AIDS and Breast Cancer yet theses disease get a lot more funding and support.  So the only way to get more attention on Lyme disease to hopefully get more funding is for us Lymies to continue to speak out and blog and get others to share our message.  

Here are links to some of my May Awareness Month blogs for you to share.     Just copy and paste the links or share this entire page.

What is Lyme Disease?

The Great Imitator

Symptoms of Lyme Disease Part I and Part II

Mental Health and Lyme Disease

 

 

 

 

May is Lyme Disease Awareness Month Blog Post #19: Mental Health and Lyme Disease

It makes sense that when you have a chronic illness you might have some feelings of sadness, hopelessness and loneliness.  Even feeling angry that you are constantly sick or grieving for the life you once had. Yes, anyone who is constantly sick day after day gets worn down and feels lost that their suffering may never end.


But would if you had a disease that could actually cause mental health problems?  

mood swings


I’ve read that 95% of all Lyme Disease Warriors have mental health problems.  But unfortunately most are misdiagnosed as having a psychiatric disorder instead.  Many people are on so many different medications because the psychiatric doctors don’t understand that there can be an underlying illness that can cause those symptoms.  Just think if all mental health professionals considered Lyme Disease as a cause and sent patients to a Lyme Literate MD (LLMD) there would be so much less suffering and more healing.  Many mental health professionals that have Lyme are testing their patients themselves or sending them to an LLMD. But unfortunately many people spend years and years on psychiatric medications and never get better.   Psychiatrists push medications, hospitalization and electroconvulsive therapy to patients and many never get better. WAKE UP PEOPLE!  If you continue to take meditations for a condition a doctor says you have and they don’t work then maybe you don’t have that condition.  You need to determined the root cause of your symptoms and treat it to heal.  I think a good doctor would be one using medications temporarily while trying to determine the cause so their patients can heal. 

Here is a great article by Sarah Marzillier: What Psychologists need to know about Lyme disease from 2009

And a brochure from the International Lyme and Associated Disease Society (ilads)


Remember Lyme Disease can mimic over 300 illnesses.  When a patient presents with depression, anxiety, bipolar or even schizophrenia you need to ask about other symptoms and get a medical history. 

Does the patient have any physical symptoms?

  • pain or aches in their body
  • migraines
  • heart problems
  • tremors or seizures
  • thyroid issues
  • memory problems
  • joint problems
  • sleep problems
  • fatigue
  • arthritis

Or have they been told these other labels? MS, ALS, Fibromyalgia, RA, Alzheimer’s, Chronic Fatigue Syndrome or anything else with an unknown cause.  If so, GET THEM TO A LYME LITERATE DOCTOR (MD or ND).


My experience:  I started feeling depressed about the same time I started getting frequent migraines. It’s very common for migraineur’s to get depression because we spend a lot of time in a dark room and don’t get much sunshine.  However, over the 20 years that I was wrongly diagnosed I was on numerous medications for whatever labels the doctors thought I had.  Of course, the medications made me worse and I eventually when off all them.

Psychiatrists feel they must label your actions as some psychiatric disorder.  They can’t separate a common occurrence of a person crying and being angry about something without labelling it and prescribing medications.

My last visit to a psychiatrist was the worst.  I was in excruciating and debilitating pain. I was almost at the point of needing a wheelchair. I was not able to walk without pain meds and the doctor lied to me and said she refilled my prescription when she didn’t. So, of course I was extremely upset that the doctor lied and no other doctors were helping me determine what was wrong. When I arrived at my appointment barely walking, I was angry and crying and told my psychiatrist how horrible several doctors had treated me. Her only answer was that I needed a mood stabilizer. Unbelievable!  Yes, I had a few choice words for her and never went back.  Patients should not be treated so poorly by physicians. I’ve had two decent doctors in 24 years and Psychiatrists are the worst! They are prescription happy! They think everyone needs medications.  It’s maddening!!  And when you get side effects from a drug they give you another to add to it to mask the side effects.  IT MAKES NO SENSE AT ALL!  They give depressed patients drugs that have suicide tendencies as a side effect.   Please read all you drug inserts and check for side effects and if you are not comfortable with any doctor and how they treat you find someone new. GO WITH YOUR GUT!  YOU KNOW WHAT’S BEST FOR YOU! Anyone that has ever been outside in their entire life (HAHA that is everyone)  has a chance of having Lyme disease and multiple co-infections.  Also, lyme has been proven to be passed from mom to baby and an STD.  YIKES!   


Why does Lyme Disease and it’s co-infections cause psychiatric disorders?

The infections can effect your central nervous system. A bacterial infection of a spirochete can make it’s way into your brain. Lymies have many other toxins in them that cause brain fog and other psychiatric issues too.

Our medical community can’t continue to ignore this.  At some point every doctor including psychiatrists needs to be educated in Lyme Disease.  Right now, most doctors have completely false information about Lyme including psychiatrists.

The medical community failed me for over 20 years

For all doctors:  It is NOT “all in our head”


There are many stories of people who were only assumed to have a mental illness when they actually had Lyme Disease.  Here is the story about Ally Hilfiger, daughter of Fashion Designer Tommy Hilfiger.  He committed her to a psych ward and luckily a doctor  was able to determine she had Lyme Disease.  

Ally Hilfiger On How Being Institutionalized By Her Father Saved Her Life

I hate the word crazy but this meme says a lot.