Lyme Disease Awareness: The Lyme Cryme

Today is the last day of Lyme Disease awareness month so I thought I’d share a post about Lyme Disease. Most people don’t know anything about Lyme or they think it’s no big deal and easy to treat. It’s a bacterial infection so just take antibiotics right? WRONG!

Lyme is very complicated. It is easy to get and difficult to treat. Unfortunately most medical professionals (probably at least 90%) are not educated in Lyme Disease and therefore, most people go undiagnosed or misdiagnosed for years or decades. I was undiagnosed for 20 years. I had a daily migraine for 20 years and a some other symptoms that I now know was all caused by Lyme, co-infections , mold, heavy metals and more.

Lyme is not one infection. Lyme is a huge umbrella of issues. It includes bacterial and viral infections, mold illness (CIRS), toxins, gut issues, genetics, EMF’s and more. The list of Lyme symptoms are endless and vary from person to person. All these issues can lay dormant for years or even decades and appear when a person has a major trauma or stressor in their life. Even, having a baby or a surgery is a trauma to a persons body and can bring out dormant infections.

The main reason people being misdiagnosed or undiagnosed is the testing is inaccurate. Below is a long video with a whistleblower talking about what is called the Lyme Cryme. You can also check out Truth Cures. The video is basically showing the fraud the CDC and Big Pharma committed. They wanted to make money on a vaccine so they falsified the Lyme testing to eliminate 85% of people with neurological Lyme. So 85% of people that would have tested positive for Lyme before the vaccine would now test negative. The vaccine actually ended up giving people neurological Lyme and was pulled from the market. Now the doctors use this useless test to determine if a patient has Lyme or not. Interesting part is I have read many articles that state you can not vaccinate against Lyme because of the type of bacteria it is. It’s crazy! The sad part is the patients are the ones that suffer. In fact, a mom of a Lyme warrior who was following my page just informed me that her daughter died after 3 years of fighting. Her original false diagnosis was ALS. I don’t know her full story but people die from this disease everyday and no one is doing anything about it.

Key points to know:

  • A negative test does not mean you do not have it.
  • Do not believe any regular doctor that says any of the following:
    • Lyme does not exist in your state. False!
    • If you don’t remember a bite then you don’t have it. False!
    • If you didn’t get a rash you don’t have it. False!
    • Your test was negative so you don’t have it. False!
    • If you had a rash and got a short course of antibiotics you are cured. False!
  • A rash is 100% confirmation that you do have Lyme and co-infections.
  • Most people don’t get a rash.
  • Over 70% of people become chronic even after a short course of antibiotics.
  • Most people don’t know they even been bit.
  • Lyme can be transmitted by ticks, fleas and mosquitos.
  • Lyme and co-infections can be transferred from mom to baby.
  • The USA blood supply is infected. Currently only one state in the country tests for babesiosis which is just one of the Lyme co-infections.
  • There are over 300 Strains of Borrelia burgdorferi (Lyme) worldwide. The useless ELISA blood test is only testing for one.
  • Most regular doctors do not test for co-infections.
  • There is no cure for Lyme.
  • If someone with Lyme says you have it BELIEVE THEM! You probably do.

Our medical system in the USA is so backwards. It is for-profit system and everything is based on making money. They do not do research to help people. They do it to develop a drug to sell to make money. Doctors are only trained to review symptoms and give a label they call a diagnosis. They are not trained to determine the cause of symptoms. Sure if you have a common acute illness like a sinus of bladder infection or you need surgery then the medical community can help you. But they can not help people with chronic illnesses. They don’t want to. They need customers for life. Like I said, it’s all about money. Don’t even get me started on the Chemotherapy scam.

A true diagnosis is when you know the root cause of your symptoms. If you don’t then you don’t have a real diagnosis. Ask your doctor what is causing your symptoms and if they say the following go to a Lyme Literate doctor. You can find one here.

  • We don’t know what is causing your symptoms
  • It’s genetics
  • Some people just get these symptoms for no known reason
  • The only thing you can do is manage your symptoms with medications

Everyone with the following needs to be properly evaluated for everything under the Lyme Umbrella. The only way to do that is to see a Lyme Literate doctor. There are special labs that test for Lyme and co-infections but Lyme is a clinical diagnosis. There are even special doctors that test for mold illness (CIRS). Unless you have seen a Lyme Literate doctor you can not say you do not have it. If you want a chance at healing and possibly getting rid of your symptoms see a Lyme Literate doctor. It does not mean you have to treat with them but they are the only type of doctor that can rule out Lyme.

  • Amyotrophic lateral sclerosis (ALS)
  • Multiple Sclerosis (MS)
  • Chronic Fatigue Syndrome (CFS/ME)
  • Chronic Migraine
  • Depression
  • Anxiety and Panic Attacks
  • Bi-Polar
  • Any mental health issues
  • Parkinsons
  • Fibromyalgia
  • Alzheimer’s
  • Rheumatiod Arthritis (RA)
  • Lupus
  • Anyother label with no known cause
  • Autism
  • ADD, ADHD
  • Crohn’s and Colitis
  • Anyone with multiple labels

There are many stories of people given these above labels that actually had lyme and have completely healed.

There are causes to all symptoms

Here is a great story of a 17-yr old that was diagnosed as on the Autism spectrum when he was 18-months old. All his issues started after a vaccine. There are many stories similar to his and these stories need to be shared. His mom was a Naturopathic Doctor and was determined to find the cause. She did and now his symptoms are now all gone. TeenLymeHub – Lyme & Autism

I was undiagnosed for 20 years. I had a chronic daily migraine for 20 years and was told there was no known cause and some people just get migraines. I was also told it’s just genetics. Getting the Lyme diagnosis allowed me to treat the causes and heal. Getting a diagnosis sounds great but the healing journey is hell and not one treatment works for everyone. Unless you have Lyme you can’t even comprehend the level of pain and suffering. I was so debilitated that I felt I would soon need a wheel chair to get around. I was not believed by the medical community. I was lied to, bullied, disrespected, given many wrong “diagnoses” and then told by them I just need psychiatric meds. I was also told several times I did not have Lyme.

My 3 main treatments were Hyperthermia in Germany, Ozone Therapy and DNRS by Annie Hopper. You can read my blog for more details. Happy Healing!

Check out the Lyme Cryme video and get the facts yourself.

The Lyme Cryme Video

Gratitude

Happy 2019!

After finally curing my daily migraine of 20 years there are many things I can be grateful for going into 2019.  My chronic illness journey began in 1995 and I never thought I would ever be able to say I no longer suffer from daily migraines.  I never thought I would have one day without a migraine let alone months.  I can’t believe I don’t need my neuro-stimulator implant anymore and I’m considering having it removed.  I took control of my health. I educated myself on what my body needed. I decided myself what treatments, supplements and detoxing methods were best for me.  

In 2013, I was grateful for my implant and I still am today.  It gave me 80% relief of the daily pain since I had it implanted.  I knew it was not a cure but at the time and I was told there is no cure for migraine.  I believed that for 20 years and now I know that is not true.  See my list of possible causes here.

Migraine is a symptom.

I’m grateful that a cure was possible and I did it!  I’m grateful that I researched and researched.  I’m grateful that I was diagnosed with Lyme, Bartonella, Babesia, CIRS due to mold and more in 2015 because it got me to where I am today.  No more daily migraines!  I went from having 365 days a year with a migraine to about 20 in 2018.  WOW!  That’s incredible!  I went for 20 years not knowing a day without pain.  And now I have had so many pain free days it’s almost unbelievable.  

Looking back:

  • I am grateful that I healed most all my Lyme symptoms in 2017.
  • I am grateful I was able to travel with my husband to Germany for treatment.
  • I am grateful for my amazing, supportive husband who is the FUN one in the house.
  • I am grateful my husband is home most of the time.  Young retiree. 
  • I am grateful we get to spend every day together.
  • I am grateful for my beautiful dog and crazy cat.
  • I am grateful for my supportive and really helpful Sister.  
  • I am grateful my brother who told me I probably have Lyme several years ago.
  • I’m grateful for my occasional outings with friends.
  • I am grateful that I learned the truth that migraines are a symptom of something.
  • I am grateful for the internet and all the information.
  • I am grateful for the online Lyme and chronic illness community.  Knowing you are not alone in your journey keeps you going.
  • I am grateful that there are many causes to migraines and I determined mine.
  • I am grateful I don’t need my implant anymore.
  • I am grateful that chronic migraine can be cured.
  • I am grateful for my attendance at the DNRS program in March.
  • I am grateful that my brain is Neuroplastic.
  • I am grateful for my DNRS buddy Theresa and the almost daily phone calls.
  • I am grateful for Theresa’s love, friendship, support and accountability.  
  • I am grateful I no longer need IV’s.
  • I am grateful that DNRS is healing my mold illness (CIRS)
  • I am grateful I no longer take any prescription drugs.
  • I am grateful that I lost 40lbs after going off all prescription drugs.  WOW!
  • I am grateful I was able to buy my own ozone machine to do my own treatments at home.
  • I am grateful for my personal ozone expert, Liz (oh wait, I mean Zil, inside joke)
  • I am grateful for Zil’s love, laughter, friendship, expertise, patience and willingness to train me on how to use my ozone machine.
  • I am grateful my brain is now functioning so well I was able to absorb all the training.
  • I am grateful that Zil and I can discuss anything relating to our bodies and laugh at the same time. 
  • I am grateful for all the treatments, supplements and detoxing stuff I did and still do that got me here today and are keeping me healthy.
  • I am extremely grateful that that got rid of my daily migraine of 20 years.

Going forward into 2019:  

Using DNRS I now constantly tell myself the following:

  • I am happy.
  • I am healthy.
  • Every cell in my body is healed.
  • All body systems are beautifully balanced and working amazing together.
  • All the organs in my body are healed.
  • I am strong.
  • My brain is functioning amazing.
  • I am proud of myself.
  • I am not giving up.
  • Neuroplasticity will rewire my brain and I will heal completely.
  • The DNRS program works.
  • I fall asleep each night so easily.
  • I wake up each morning fully rested and energized to start my day.
  • I live in the present moment.
  • 2019 is going to be a year full of fun adventures.
  • I love my amazing, beautiful and wonderful life with my husband! 

There are many CAUSES to Migraine.

So if you are a #migrainewarrior, know the following:

  • There is a cause to your migraines and you can possibly cure them.
  • No, I am not talking about triggers.  Triggers are different than causes.  You can eliminate all triggers and still suffer.  So determine the cause(s).
  • There is a cause to every symptom in your body and don’t accept “no known cause” as an answer.  Keep searching for the cause(s).
  • Migraine is a symptom and should not be considered neurological disease that must be managed by abortive and/or preventative medications.  You can call it a disease but still ask and determine what is causing this disease.  If I figured it out after 20 years so can you.
  • Migraines may be inherited or considered genetic but there is still a cause because some of them pass from mom to baby. 

 

So what are you in the chronic illness community grateful for?

 

There is always something to be grateful for!

 

Chronic Lyme Disease: Life with a Chronic Illness

I recently came across this great video of people describing what it is like living with Lyme Disease.  It’s really hard for “healthy” people to understand and they say..

You don’t get it until you get it.

This is so true.  You can not even in your most vivid imagination comprehend how horrific, debilitating, painful and disabling this disease can be.  This disease is worse than cancer.  Yes it is and here is why:

  • You get zero support from the medical community because our own government denies Chronic Lyme Disease exists.
  • You are told your symptoms are made up and “all in your head”  and you need a psychiatrist.  You can not make up these horrific symptoms!
  • There is no protocol to heal and it is a do-it-youself disease.
  • 90% of treatments are not covered by insurance so you can go broke trying to heal.
  • You can die from Lyme Disease.  Lyme Disease and Co-infections can get into every organ and tissue in your body and can cause everything and anything.
  • Your friends and family may not believe you are even sick.
  • You doctors will tell you you have XXX and say there is no known cause for what you have.   So you are really only getting a name for your symptoms and not a true diagnosis.  

Everyone in this video has Lyme Disease.  They have all received many other wrong names for their symptoms over the years.  A true diagnosis is when you determine the CAUSE of your symptoms.  Please leave any doctors that say you have MS, ALS, Fibromyalgia, Parkinson’s, Chronic Fatigue Syndrome, Chronic Migraines, Alzheimers, Mental Health Issues and anything else unless you are given a cause and treating the cause.  If you are just taking medications to mask symptoms or to slow the progression you are not treating the cause.   

I was misdiagnosed for 20 years.  I was told:

  • some people just have migraines.  
  • oh your mom had some so that’s why you have them.
  • I don’t know why you have a migraine every day.
  • there isn’t a known cause for migraines.
  • it’s a neurological disease.

ALL WRONG!!!  You do not just wake up one day with a migraine and it doesn’t go away for decades.  Just because my mom had some does not tell me why I do.  Just because those doctors didn’t know why I had one doesn’t mean there is not a reason.  

History will look back on Lyme Disease 30 years from now and it will be the biggest lie, fraud and criminal act committed by the medical community ever!

I’ve been sick for 22 years.  I got lyme at least 40 years ago or was born with it and prevention is the only cure.  You must protect yourself every time you go outdoors.  One tiny bite can ruin your life.

Disappearing From Society – a look into Life with Chronic Illness

 

 

 

 

 

 

When I Find Myself Living in “Lyme Hell”

Thank you to the online site The Mighty for publishing my article. The Mighty publishes stories of real people living life with serious illinesses.  These stories can help others who feel alone at times.  We help each other by sharing and reading each other’s stories.  So here is one of mine.

When I Find Myself Living in “Lyme Hell”

 

 

May is Lyme Disease Awareness Month Blog Post #31 We Are Warriors!

Today is final day of my 2017 Lyme Disease Awareness Month Blog Posts! I think I did more post this month than I’ve done the entire time of my blog.  Not really but it’s been a lot of writing this month.  So I hope you have learned something about this horrific, debilitating and potential fatal disease.  Prevention is the only cure!

Raising awareness is really important because

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Chronic Lyme Disease exists! 

Millions of people like me are not faking it!  

Please don’t judge us!  

We are fighting an invisible battle that you know nothing about!


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If you suffer from Lyme Disease like I do remember:

You are a warrior!

Your life matters!

You are strong!

You will get better!

#KellyClarkson  What Doesn’t Kill You Makes you Stronger!

STRONGEST PERSON YOU KNOW

By A Migraineur’s Life w/ Lyme Disease

 

 

May is Lyme Disease Awareness Month Blog Post #29 The Financial Cost of Lyme

Having Lyme Disease is a huge financial burden.  I’ve mentioned before that 90% of treatments to heal from Lyme Disease are not covered by insurance.  So what does it cost to have Chronic Lyme Disease?

Obviously, if depends on what you can afford.  We pay medical premiums for years hoping to never need care but when you have a disease that is denied by the CDC your insurances will not reimburse you anyways.  

Lyme Literate MD’s (LLMD) are expensive:  When you make an appointment for a LLMD you must pay 1/2 of of the visit cost up front.  YES!  REALLY!  No co-pays!  So, where I live LLMD’s are around $600 for your first visit.  So when you make the appointment you have to pay $300 on your credit card.  If you are too sick to make the appointment and you have to cancel you are out $300.  

At my first visit the LLMD wanted to run a lot of blood tests to confirm I had Lyme.  She highly suspected it but wanted to confirm.  Those blood test was around $1,200. Payment up front and you can try and get money back from your insurance later.  Good luck!  

Then they recommend more testing at further visits, prescriptions and about 15 supplements at each visit.  Then every 3 months when you see them again it is around $450 for 1/2 hour and more testing is recommended and more supplements. 

  • LLMD First Visit:  $600
  • Lyme Testing over $1,000
  • Second Lyme Visit and future visits $450 for 1/2 hour
  • Supplements at each visit $100 to $500
  • Other testing $300 to $800
  • Prescriptions costs depend on your medical plan

So after one year you are basically out of pocket or in debt just for doctor visits around $2,000 and testing and supplements they recommend another $1,000-$3000.  Then prescriptions if you get any.  Most Lyme treatments are considered alternative therapy and not covered by insurance but you must do alternative treatments to heal.  These alternative treatments may be necessary for years and years. 

Some doctors recommended regular infusions or they tell you do other testing outside of their office or other therapies on your own.  Most of us have pain pain and spend a lot of money trying alternative solutions to get off opioids.   If you are like me, you end up in the ER a lot and those co-pays add up too. 

  • Vitamins and minerals
  • Probiotics
  • Genetic testing for Lyme and Mold is recommended
  • Inflammatory marker blood tests are recommmend
  • Organic food
  • Epsom Salt Baths
  • Magnesium baths
  • Coffee Enemas
  • Medical Marijuana if you want help with pain or sleep without prescription drugs
  • Mold testing for your home
  • Removal of amalgam fillings
  • Lymphatic system support like dry brushing, rebounding and massage
  • Ozone treatments 
  • Naturopathic appointments
  • Heavy metal testing and chelation treatments 
  • Special things to take when herxing
  • Talk therapy to help you deal with all of this
  • Supportive drops and herbs to take daily
  • Check out my list of stuff here.

Now, think if you are on a limited budget and had to pick and choose what tests to run and which supplements to buy to try and heal.  Because you don’t know what may help and you are so desperate to feel better you can go broke trying everything recommended.  


I do understand why some medical professionals think LLMD’s are a scam.  Most MD’s don’t believe in alternative treatments so if it’s not a prescription drug they think it’s a joke or scam.  So when people who are so sick keep buying stuff from LLMD’s and get sicker and sicker or take years to get better they don’t believe they are legitimate doctors.   LLMD’s are MD’s with added training to consider themselves Lyme specialists.  But when Chronic Lyme Disease is denied by our government and doctors don’t believe it exists of course they think LLMD’s are a scam.


Personally, I think our entire medical system in this county is disgusting.  Our government wants to keep us sick.  They are drug pushers because that is where the money is.  Fibromyalgia was not considered a disease until a drug company came up with drugs to help people.  Funny thing is most don’t work.  Gotta wonder if people really have Fibromyalgia.  Come up with a name for symptoms, make a drug for it and yes, you have a legitimate disease.  Don’t get me wrong, I believe the suffering is real!  The pain is real!  Of course I believe anyone that says they have pain because I’ve been a chronic pain sufferer for 21 years.  


Big Pharmaceutical companies are all about making money and not about healing and helping people.  Researching and developing drugs is not about helping people it’s all about money.  CDC people are tied to big pharma and make decisions based on how much money they will make or lose.  Big pharma can charge huge amounts of money for a drug just because they can.  Some of the same drugs we pay thousands of dollars for are cheap in other countries.  Same with insurance companies.  Deny, Deny Deny is their policy.  They are focused on the bottom line not about getting people healed.  

I could go on and on about out horrible medical system and discuss the pros and cons of the  Affordable Care Act (Obamacare) or the potential American Health Care Act but it’s not worth it.  The bottom line is millions of people are suffering in this county and nothing is being done about it.  

It’s maddening!

So I’ll leave you with this to think about:

Oncologists make money from Chemotherapy drugs!  Yes, Chemotherapy drugs are the only drug in this county that doctors can resell for a profit.  That is why they push cancer patients on chemo.  When you get cancer you fear the worst so oncologists push chemo at your fear.   Talk about a scam.  Cancer doctors are against  natural treatments and push chemo because there is a lot of money to be made.  And there have been studies that show 97% of chemo does not work.  So if you think LLMD’s are a scam then you have to agree that oncologists are scammers too.

 

 

 

 

May is Lyme Disease Awareness Month Blog Post #28: The Do-it-Yourself Disease!

Lyme is a do-it-yourself-disease but what does that mean?

I have blogged about a lot of different information about Lyme Disease this month and there is still more out there but why is it called a do-it-yourself disease?

Basically because everyone with Chronic Lyme Disease has to figure out how to get better by themselves.  

When you start to feel sick you go to your primary care physician (PCP).  When your PCP doesn’t have an answer they send you to a specialist.  When the specialist doesn’t have an answer for you they give up and send you to a psychiatrist because they think your symptoms are “all in your head”.  The main stream medical community just gives up.  

But let’s say you eventually make it to a Lyme Literate MD (LLMD) which most people don’t and you get a diagnosis of Lyme Disease.  Then what?

WOW!

Awesome!

I finally got a diagnosis after 19 years of being sick!

Great!

I feel better now!  

Finally I am validated by a medical doctor!

I finally know why I have had a migraine every day for 2 decades!

I will now get better!

But unfortunately it’s not simple to heal and no one really knows the best treatments for you to heal.  But you want to feel better so you keep going to the LLMD.   You constantly read and research your disease to try and understand it.  

But going to an LLMD isn’t a simple answer.  Every LLMD has a different thought and approach to help you get better because there is not a specific treatment plan to follow to heal.  LLMD’s are not like your regular doctor or medical plan.  If you have problems, questions or side effects to what they have given you can not simply contact them for help.  And since most of the things you buy from are not prescription medications you can not just ask another doctor a questions about it.  

So what do you do?

Basically, you try and take their advice but if you do not research and learn from other Lymies about healing and treatments and detoxing you will not get better!  You will not get better by just following what one LLMD says.  You need to figure out yourself what is best for you.  

I have have been to 3 LLMD’s and I don’t feel any of them really helped me.  Each one had a completely different approach.  After a year and a half I was worse so I had to take matters into my own hands.  I had to decide myself what I felt was best for me.  I decided Germany and my local Naturopathic Doctor.  At this time I am not seeing an LLMD.  

We grow up believing in our medical doctors.  We are taught that they are there too help us and they will help us.  But it is not true.  When you have a disease that is denied by the medical community you have no choice but to figure it our yourself.