I recently came across this great video of people describing what it is like living with Lyme Disease. It's really hard for "healthy" people to understand and they say.. You don't get it until you get it. This is so true. You can not even in your most vivid imagination comprehend how horrific, debilitating, painful… Continue reading Chronic Lyme Disease: Life with a Chronic Illness
I've been reading more and more about Mycoplasma and I am shocked by what I am finding out. I''m still in the learning phase about but feel it's important to blog about. Apparently, most everyone (75%) with Lyme Disease have Mycoplasma. I tested (high range) positive for Mycoplasma pneumonia, which is the most common one for Lymies.… Continue reading What is Mycoplasma?
Why? Because the medical doctors have failed me for over 20 years. I have been disrespected, dismissed, treated like a drug addict, bullied, told I can't be a patient anymore because I could not drive an hour to my appointment while throwing up, told I need psychiatric medications, and misdiagnosed for 20 years! WAKE UP… Continue reading I have lost all faith, trust and confidence in our medical community.
Thank you to the online site The Mighty for publishing my article. The Mighty publishes stories of real people living life with serious illinesses. These stories can help others who feel alone at times. We help each other by sharing and reading each other's stories. So here is one of mine. When I Find Myself… Continue reading When I Find Myself Living in “Lyme Hell”
Today is final day of my 2017 Lyme Disease Awareness Month Blog Posts! I think I did more post this month than I've done the entire time of my blog. Not really but it's been a lot of writing this month. So I hope you have learned something about this horrific, debilitating and potential fatal disease.… Continue reading May is Lyme Disease Awareness Month Blog Post #31 We Are Warriors!
Having Lyme Disease is a huge financial burden. I've mentioned before that 90% of treatments to heal from Lyme Disease are not covered by insurance. So what does it cost to have Chronic Lyme Disease? Obviously, if depends on what you can afford. We pay medical premiums for years hoping to never need care but… Continue reading May is Lyme Disease Awareness Month Blog Post #29 The Financial Cost of Lyme
Just realized that Day 30 of May's posting did not go out. So here it is. Having a support system is essential to healing from any chronic illness. Family The most important is support from family. It's really difficult to watch someone you love suffer and it's extremely difficult to be a care taker. … Continue reading May is Lyme Disease Awareness Month Blog Post #30 Your Support System