Lyme Disease Awareness: The Lyme Cryme

Today is the last day of Lyme Disease awareness month so I thought I’d share a post about Lyme Disease. Most people don’t know anything about Lyme or they think it’s no big deal and easy to treat. It’s a bacterial infection so just take antibiotics right? WRONG!

Lyme is very complicated. It is easy to get and difficult to treat. Unfortunately most medical professionals (probably at least 90%) are not educated in Lyme Disease and therefore, most people go undiagnosed or misdiagnosed for years or decades. I was undiagnosed for 20 years. I had a daily migraine for 20 years and a some other symptoms that I now know was all caused by Lyme, co-infections , mold, heavy metals and more.

Lyme is not one infection. Lyme is a huge umbrella of issues. It includes bacterial and viral infections, mold illness (CIRS), toxins, gut issues, genetics, EMF’s and more. The list of Lyme symptoms are endless and vary from person to person. All these issues can lay dormant for years or even decades and appear when a person has a major trauma or stressor in their life. Even, having a baby or a surgery is a trauma to a persons body and can bring out dormant infections.

The main reason people being misdiagnosed or undiagnosed is the testing is inaccurate. Below is a long video with a whistleblower talking about what is called the Lyme Cryme. You can also check out Truth Cures. The video is basically showing the fraud the CDC and Big Pharma committed. They wanted to make money on a vaccine so they falsified the Lyme testing to eliminate 85% of people with neurological Lyme. So 85% of people that would have tested positive for Lyme before the vaccine would now test negative. The vaccine actually ended up giving people neurological Lyme and was pulled from the market. Now the doctors use this useless test to determine if a patient has Lyme or not. Interesting part is I have read many articles that state you can not vaccinate against Lyme because of the type of bacteria it is. It’s crazy! The sad part is the patients are the ones that suffer. In fact, a mom of a Lyme warrior who was following my page just informed me that her daughter died after 3 years of fighting. Her original false diagnosis was ALS. I don’t know her full story but people die from this disease everyday and no one is doing anything about it.

Key points to know:

  • A negative test does not mean you do not have it.
  • Do not believe any regular doctor that says any of the following:
    • Lyme does not exist in your state. False!
    • If you don’t remember a bite then you don’t have it. False!
    • If you didn’t get a rash you don’t have it. False!
    • Your test was negative so you don’t have it. False!
    • If you had a rash and got a short course of antibiotics you are cured. False!
  • A rash is 100% confirmation that you do have Lyme and co-infections.
  • Most people don’t get a rash.
  • Over 70% of people become chronic even after a short course of antibiotics.
  • Most people don’t know they even been bit.
  • Lyme can be transmitted by ticks, fleas and mosquitos.
  • Lyme and co-infections can be transferred from mom to baby.
  • The USA blood supply is infected. Currently only one state in the country tests for babesiosis which is just one of the Lyme co-infections.
  • There are over 300 Strains of Borrelia burgdorferi (Lyme) worldwide. The useless ELISA blood test is only testing for one.
  • Most regular doctors do not test for co-infections.
  • There is no cure for Lyme.
  • If someone with Lyme says you have it BELIEVE THEM! You probably do.

Our medical system in the USA is so backwards. It is for-profit system and everything is based on making money. They do not do research to help people. They do it to develop a drug to sell to make money. Doctors are only trained to review symptoms and give a label they call a diagnosis. They are not trained to determine the cause of symptoms. Sure if you have a common acute illness like a sinus of bladder infection or you need surgery then the medical community can help you. But they can not help people with chronic illnesses. They don’t want to. They need customers for life. Like I said, it’s all about money. Don’t even get me started on the Chemotherapy scam.

A true diagnosis is when you know the root cause of your symptoms. If you don’t then you don’t have a real diagnosis. Ask your doctor what is causing your symptoms and if they say the following go to a Lyme Literate doctor. You can find one here.

  • We don’t know what is causing your symptoms
  • It’s genetics
  • Some people just get these symptoms for no known reason
  • The only thing you can do is manage your symptoms with medications

Everyone with the following needs to be properly evaluated for everything under the Lyme Umbrella. The only way to do that is to see a Lyme Literate doctor. There are special labs that test for Lyme and co-infections but Lyme is a clinical diagnosis. There are even special doctors that test for mold illness (CIRS). Unless you have seen a Lyme Literate doctor you can not say you do not have it. If you want a chance at healing and possibly getting rid of your symptoms see a Lyme Literate doctor. It does not mean you have to treat with them but they are the only type of doctor that can rule out Lyme.

  • Amyotrophic lateral sclerosis (ALS)
  • Multiple Sclerosis (MS)
  • Chronic Fatigue Syndrome (CFS/ME)
  • Chronic Migraine
  • Depression
  • Anxiety and Panic Attacks
  • Bi-Polar
  • Any mental health issues
  • Parkinsons
  • Fibromyalgia
  • Alzheimer’s
  • Rheumatiod Arthritis (RA)
  • Lupus
  • Anyother label with no known cause
  • Autism
  • ADD, ADHD
  • Crohn’s and Colitis
  • Anyone with multiple labels

There are many stories of people given these above labels that actually had lyme and have completely healed.

There are causes to all symptoms

Here is a great story of a 17-yr old that was diagnosed as on the Autism spectrum when he was 18-months old. All his issues started after a vaccine. There are many stories similar to his and these stories need to be shared. His mom was a Naturopathic Doctor and was determined to find the cause. She did and now his symptoms are now all gone. TeenLymeHub – Lyme & Autism

I was undiagnosed for 20 years. I had a chronic daily migraine for 20 years and was told there was no known cause and some people just get migraines. I was also told it’s just genetics. Getting the Lyme diagnosis allowed me to treat the causes and heal. Getting a diagnosis sounds great but the healing journey is hell and not one treatment works for everyone. Unless you have Lyme you can’t even comprehend the level of pain and suffering. I was so debilitated that I felt I would soon need a wheel chair to get around. I was not believed by the medical community. I was lied to, bullied, disrespected, given many wrong “diagnoses” and then told by them I just need psychiatric meds. I was also told several times I did not have Lyme.

My 3 main treatments were Hyperthermia in Germany, Ozone Therapy and DNRS by Annie Hopper. You can read my blog for more details. Happy Healing!

Check out the Lyme Cryme video and get the facts yourself.

The Lyme Cryme Video

Lyme Disease Awareness 2018

Today is the last day of May so I am doing this post to raise awareness for this horrific, debilitating and potentially fatal disease.

Here are important facts about Lyme Disease

  • A negative test does not mean you do not have Lyme Disease (no matter how many times they run it).  Testing
  • Lyme is commonly transmitted by ticks that are as small as a poppy seed.  And it has been shown that there are other ways to get Lyme.
  • You do not need to have a bulls-eye rash to confirm Lyme.
  • Common sign of Lyme after being outdoors ANYWHERE is getting flu-like symptoms.
  • Your regular doctor is not educated in Lyme and neither are most infectious disease specialists. Lyme Literate (LL) Doctors are the only qualified people to determine whether or not you have Lyme. LL Medical Doctors, LL Naturopathic Doctors and Lyme Literate psychotherapists exist. See Ilads.org for referrals.
  • Lyme is a clinical diagnosis because testing is inaccurate.
  • Do not believe anyone that says Lyme does not exist where you live.  
  • Lyme is easy to get and hard to treat. 
  • If you get a bulls eye rash and get antibiotics right away you still may have long term symptoms.
  • Lyme is a spiral bacteria that can work it’s way into all tissues and organs inthe body so the list of symptoms and damage to the body is never ending.  Part I
  • Lyme is not one infection.  It is an umbrella of infections and illnesses.
  • Chronic Lyme Disease DOES EXIST!
  • Alternative/Naturopathic medicine is necessary to heal Chronic Lyme and majority is not covered by insurance. Antibiotics are not the best option for Chronic Lyme but a long course is necessary if caught early.
  • Sadly, Lyme treatment is hell!

 

PREVENTION IS THE ONLY CURE

Lyme Disease is vastly underreported in the USA because of the amount of people undiagnosed and misdiagnosed. MD’s are taught by big pharma in medical school to give a “diagnosis” based on symptoms and prescribe pills to manage those symptoms. They are not trained to determine the cause.


I naively believed the “Top” Headache Specialists for 20 years that said there are no known causes to chronic migraine and some people just get them every day. I was told I just have to manage them with abortive and preventative medications. When nothing worked and I got to the last of the available pharmaceuticals I was left alone to suffer. I now know the truth and the fact that there are many causes to chronic migraine.

Naturopathic and Alternative medicine was the only option for me to heal and 90% was not covered by my insurance. 😢 Sadly, people in the USA go broke trying to get healthy.


If you have any of the following conditions please consider Lyme Disease. Especially if you have been told more than one of these conditions. See my section on testing mentioned above.

  • Chronic Migraine
  • Fibromyalgia
  • ALS 
  • MS
  • Alzheimers
  • Anxiety
  • All mental health issues. Yes Lyme infections can cause depression, cyclothymia, bi-polar and schizophrenia. Those spirochete get in your brain.
  • Chronic Fatigue Syndrome (also commonly caused by CIRS/Mold)
  • Rheumatoid Arthritis
  • Lupus
  • Parkinson’s
  • Any illness that has no known cause
  • If you are told your symptoms are “all in your head”

Wouldn’t it be worth checking into Lyme it if you could heal and get your life back. How amazing would it feel to have symptoms gone? Stop accepting a “diagnosis” and being told you will never get better because there is no cure and we can only manage your symptoms.


You can heal from Chronic Lyme!!

If you do have Chronic Lyme disease and are not getting better please consider

  • Chronic Inflammatory Response Syndrome (CIRS).  Commonly caused by mold.
  • Dynamic Neural Training System (DNRS

The common phrase among Lymies.

You won’t get it until you get it.

Chronic Lyme Disease: Life with a Chronic Illness

I recently came across this great video of people describing what it is like living with Lyme Disease.  It’s really hard for “healthy” people to understand and they say..

You don’t get it until you get it.

This is so true.  You can not even in your most vivid imagination comprehend how horrific, debilitating, painful and disabling this disease can be.  This disease is worse than cancer.  Yes it is and here is why:

  • You get zero support from the medical community because our own government denies Chronic Lyme Disease exists.
  • You are told your symptoms are made up and “all in your head”  and you need a psychiatrist.  You can not make up these horrific symptoms!
  • There is no protocol to heal and it is a do-it-youself disease.
  • 90% of treatments are not covered by insurance so you can go broke trying to heal.
  • You can die from Lyme Disease.  Lyme Disease and Co-infections can get into every organ and tissue in your body and can cause everything and anything.
  • Your friends and family may not believe you are even sick.
  • You doctors will tell you you have XXX and say there is no known cause for what you have.   So you are really only getting a name for your symptoms and not a true diagnosis.  

Everyone in this video has Lyme Disease.  They have all received many other wrong names for their symptoms over the years.  A true diagnosis is when you determine the CAUSE of your symptoms.  Please leave any doctors that say you have MS, ALS, Fibromyalgia, Parkinson’s, Chronic Fatigue Syndrome, Chronic Migraines, Alzheimers, Mental Health Issues and anything else unless you are given a cause and treating the cause.  If you are just taking medications to mask symptoms or to slow the progression you are not treating the cause.   

I was misdiagnosed for 20 years.  I was told:

  • some people just have migraines.  
  • oh your mom had some so that’s why you have them.
  • I don’t know why you have a migraine every day.
  • there isn’t a known cause for migraines.
  • it’s a neurological disease.

ALL WRONG!!!  You do not just wake up one day with a migraine and it doesn’t go away for decades.  Just because my mom had some does not tell me why I do.  Just because those doctors didn’t know why I had one doesn’t mean there is not a reason.  

History will look back on Lyme Disease 30 years from now and it will be the biggest lie, fraud and criminal act committed by the medical community ever!

I’ve been sick for 22 years.  I got lyme at least 40 years ago or was born with it and prevention is the only cure.  You must protect yourself every time you go outdoors.  One tiny bite can ruin your life.

Disappearing From Society – a look into Life with Chronic Illness

 

 

 

 

 

 

When I Find Myself Living in “Lyme Hell”

Thank you to the online site The Mighty for publishing my article. The Mighty publishes stories of real people living life with serious illinesses.  These stories can help others who feel alone at times.  We help each other by sharing and reading each other’s stories.  So here is one of mine.

When I Find Myself Living in “Lyme Hell”

 

 

May is Lyme Disease Awareness Month Blog Post #31 We Are Warriors!

Today is final day of my 2017 Lyme Disease Awareness Month Blog Posts! I think I did more post this month than I’ve done the entire time of my blog.  Not really but it’s been a lot of writing this month.  So I hope you have learned something about this horrific, debilitating and potential fatal disease.  Prevention is the only cure!

Raising awareness is really important because

bracelet silver green 2

Purchase Bracelet at Punchy Jewelry


Chronic Lyme Disease exists! 

Millions of people like me are not faking it!  

Please don’t judge us!  

We are fighting an invisible battle that you know nothing about!


IMG_4813

Purchase Earrings at Punchy Jewelry


If you suffer from Lyme Disease like I do remember:

You are a warrior!

Your life matters!

You are strong!

You will get better!

#KellyClarkson  What Doesn’t Kill You Makes you Stronger!

STRONGEST PERSON YOU KNOW

By A Migraineur’s Life w/ Lyme Disease

 

 

May is Lyme Disease Awareness Month Blog Post #28: The Do-it-Yourself Disease!

Lyme is a do-it-yourself-disease but what does that mean?

I have blogged about a lot of different information about Lyme Disease this month and there is still more out there but why is it called a do-it-yourself disease?

Basically because everyone with Chronic Lyme Disease has to figure out how to get better by themselves.  

When you start to feel sick you go to your primary care physician (PCP).  When your PCP doesn’t have an answer they send you to a specialist.  When the specialist doesn’t have an answer for you they give up and send you to a psychiatrist because they think your symptoms are “all in your head”.  The main stream medical community just gives up.  

But let’s say you eventually make it to a Lyme Literate MD (LLMD) which most people don’t and you get a diagnosis of Lyme Disease.  Then what?

WOW!

Awesome!

I finally got a diagnosis after 19 years of being sick!

Great!

I feel better now!  

Finally I am validated by a medical doctor!

I finally know why I have had a migraine every day for 2 decades!

I will now get better!

But unfortunately it’s not simple to heal and no one really knows the best treatments for you to heal.  But you want to feel better so you keep going to the LLMD.   You constantly read and research your disease to try and understand it.  

But going to an LLMD isn’t a simple answer.  Every LLMD has a different thought and approach to help you get better because there is not a specific treatment plan to follow to heal.  LLMD’s are not like your regular doctor or medical plan.  If you have problems, questions or side effects to what they have given you can not simply contact them for help.  And since most of the things you buy from are not prescription medications you can not just ask another doctor a questions about it.  

So what do you do?

Basically, you try and take their advice but if you do not research and learn from other Lymies about healing and treatments and detoxing you will not get better!  You will not get better by just following what one LLMD says.  You need to figure out yourself what is best for you.  

I have have been to 3 LLMD’s and I don’t feel any of them really helped me.  Each one had a completely different approach.  After a year and a half I was worse so I had to take matters into my own hands.  I had to decide myself what I felt was best for me.  I decided Germany and my local Naturopathic Doctor.  At this time I am not seeing an LLMD.  

We grow up believing in our medical doctors.  We are taught that they are there too help us and they will help us.  But it is not true.  When you have a disease that is denied by the medical community you have no choice but to figure it our yourself.

 

 

 

 

 

May is Lyme Disease Awareness Month Blog Post #27 #WEARENOTADDICTS

What does this hashtag even mean?  #WEARENOTADDICTS

There seems to be an attack or war against chronic pain patients like myself in this country and it is getting worse every day.  

Our government says there is an “opioid epidemic”  or an “opioid crisis” in this country without really giving you the whole picture.  They encourage the media to write big attracting headlines calling everyone who uses opioids an addict.  They take away the judgment of a doctor and come between them and their patient.  They have scared so many physicians that many have stopped prescribing opioids all together.  They have come out with stricter guidelines that only cause harm to legitimate chronic pain sufferers.  

I have been a chronic pain sufferer for 21 years and I have been treated very poorly by the medical community and it has gotten worse in the last year because there is a war against people like me.  

Let me explain to you the difference between a chronic pain sufferer and an addict because they are two completely different people.  

Chronic pain sufferers

  • do not make up pain
  • would love for people to believe us and stop judging us
  • are regular people who do not want to live a life in pain
  • are people who had a “life” or career before becoming a sufferer
  • did not choose to live with a chronic disease
  • we did not do anything wrong to deserve this pain or judgmental treatment from others
  • we try to stay hopeful that some day we won’t wake up suffering so much
  • we try so hard every day to get better and just accomplish one normal task a day
  • take pain medications to live a “normal” life
  • take pain medications just to get out of bed and function like a “normal” person
  • take pain medications to get to a tolerable level of pain not to eliminate it completely because for most of us that is impossible
  • volunteers to do random drug testing at their doctors to constantly prove to them that they are not taking street drugs or drugs from other physicians.  Yes, we have to sign a contract with our pain specialists. 
  • agree to meet their physicians on a regular basis and try non-drug alternatives to reduce their suffering
  • do not want to get “high”
  • break pills in half to reduce the dosage because they are limited on how many pills they are prescribed.  so, yes, we suffer more than we say.
  • break pills in half to see if they can get to a tolerable level on a lower dose
  • have no choice but do become dependent on their pain medications because that is what happens to you without your control
  • we would love to never have to see a doctor again
  • we constantly feel guilty of being a burden to our family and friends
  • we are jealous of you
  • we do not want to live like this

What is an Addict?

  • drug addiction is a brain disease according to NIDA
  • some may have started out in pain but end up having a drug addiction disease
  • may lie about being in pain to get medications
  • take drugs to get high or the next fix
  • go broke trying to get drugs to get high
  • some addicts resort to street drugs
  • some addicts shop doctors to get prescriptions
  • some may have started out in pain but enjoy the high so constantly seek it out
  • make all of us legitimate pain sufferers look like them

Dependence vs Addiction

Dependence usually refers to physical dependence.  For example, if you were in a coma and every day you received opioid medications you would become dependent on it and would wake up and have most likely have withdrawal symptoms if you were not given it again.  Your have no choice in it.  So if you take it as prescribed your body will become dependent on it and you will have withdrawal symptoms if you suddenly stop.   So, most people who are on it long term take less and less as they heal.  That’s if they have a condition they can heal from.  But if you stop suddenly and have been on it a while you will go through withdrawals which is a variety of symptoms.  The withdrawal is physical.  It’s your body having a reaction from the substance being out of your system.  So you can be physically dependent on it without being an addict.  The frustrating part is most people think you are automatically going to be an addict once you start the meds which is not the case for majority of people.  There are many other drugs that cause dependence besides opioids but the government has put fear inside the heads of physicians so some will abruptly stop prescribing it and the person will suffer immensely.  The suffering is physical not psychological.  Think about people who drink caffeine every day.  They can become dependent on it and suffer withdrawals like headaches if they stop drinking it suddenly.  Easiest way to get off caffeine is to wean yourself off.  

Addiction

Addiction is a different behavior all together.  It’s psychological.  It’s a compulsive behavior.  An addict is craving the high or the euphoric feeling they get from the drug.  They like it.  They feel it makes them function better but it’s not true.  An addicts life will completely change for the worse.  They won’t realize the harmful behavior and will do anything or spend a lot of money to get the drug or different drugs.  It will effect their home, school and work life for the worse.

Lastly, people dependent on their opioid medications will function better.  They can live a normal life.  They can get out of bed, shower, eat breakfast, go to work, socialize with friends.

There is a chronic pain crisis in this country and no one is addressing it!  They are so focused on talking about opioids and restricting opioids from people that need it.

So NO #WEARENOTADDICTS  

My prior post on opioids here.