Lyme Disease Awareness: The Lyme Cryme

Today is the last day of Lyme Disease awareness month so I thought I’d share a post about Lyme Disease. Most people don’t know anything about Lyme or they think it’s no big deal and easy to treat. It’s a bacterial infection so just take antibiotics right? WRONG!

Lyme is very complicated. It is easy to get and difficult to treat. Unfortunately most medical professionals (probably at least 90%) are not educated in Lyme Disease and therefore, most people go undiagnosed or misdiagnosed for years or decades. I was undiagnosed for 20 years. I had a daily migraine for 20 years and a some other symptoms that I now know was all caused by Lyme, co-infections , mold, heavy metals and more.

Lyme is not one infection. Lyme is a huge umbrella of issues. It includes bacterial and viral infections, mold illness (CIRS), toxins, gut issues, genetics, EMF’s and more. The list of Lyme symptoms are endless and vary from person to person. All these issues can lay dormant for years or even decades and appear when a person has a major trauma or stressor in their life. Even, having a baby or a surgery is a trauma to a persons body and can bring out dormant infections.

The main reason people being misdiagnosed or undiagnosed is the testing is inaccurate. Below is a long video with a whistleblower talking about what is called the Lyme Cryme. You can also check out Truth Cures. The video is basically showing the fraud the CDC and Big Pharma committed. They wanted to make money on a vaccine so they falsified the Lyme testing to eliminate 85% of people with neurological Lyme. So 85% of people that would have tested positive for Lyme before the vaccine would now test negative. The vaccine actually ended up giving people neurological Lyme and was pulled from the market. Now the doctors use this useless test to determine if a patient has Lyme or not. Interesting part is I have read many articles that state you can not vaccinate against Lyme because of the type of bacteria it is. It’s crazy! The sad part is the patients are the ones that suffer. In fact, a mom of a Lyme warrior who was following my page just informed me that her daughter died after 3 years of fighting. Her original false diagnosis was ALS. I don’t know her full story but people die from this disease everyday and no one is doing anything about it.

Key points to know:

  • A negative test does not mean you do not have it.
  • Do not believe any regular doctor that says any of the following:
    • Lyme does not exist in your state. False!
    • If you don’t remember a bite then you don’t have it. False!
    • If you didn’t get a rash you don’t have it. False!
    • Your test was negative so you don’t have it. False!
    • If you had a rash and got a short course of antibiotics you are cured. False!
  • A rash is 100% confirmation that you do have Lyme and co-infections.
  • Most people don’t get a rash.
  • Over 70% of people become chronic even after a short course of antibiotics.
  • Most people don’t know they even been bit.
  • Lyme can be transmitted by ticks, fleas and mosquitos.
  • Lyme and co-infections can be transferred from mom to baby.
  • The USA blood supply is infected. Currently only one state in the country tests for babesiosis which is just one of the Lyme co-infections.
  • There are over 300 Strains of Borrelia burgdorferi (Lyme) worldwide. The useless ELISA blood test is only testing for one.
  • Most regular doctors do not test for co-infections.
  • There is no cure for Lyme.
  • If someone with Lyme says you have it BELIEVE THEM! You probably do.

Our medical system in the USA is so backwards. It is for-profit system and everything is based on making money. They do not do research to help people. They do it to develop a drug to sell to make money. Doctors are only trained to review symptoms and give a label they call a diagnosis. They are not trained to determine the cause of symptoms. Sure if you have a common acute illness like a sinus of bladder infection or you need surgery then the medical community can help you. But they can not help people with chronic illnesses. They don’t want to. They need customers for life. Like I said, it’s all about money. Don’t even get me started on the Chemotherapy scam.

A true diagnosis is when you know the root cause of your symptoms. If you don’t then you don’t have a real diagnosis. Ask your doctor what is causing your symptoms and if they say the following go to a Lyme Literate doctor. You can find one here.

  • We don’t know what is causing your symptoms
  • It’s genetics
  • Some people just get these symptoms for no known reason
  • The only thing you can do is manage your symptoms with medications

Everyone with the following needs to be properly evaluated for everything under the Lyme Umbrella. The only way to do that is to see a Lyme Literate doctor. There are special labs that test for Lyme and co-infections but Lyme is a clinical diagnosis. There are even special doctors that test for mold illness (CIRS). Unless you have seen a Lyme Literate doctor you can not say you do not have it. If you want a chance at healing and possibly getting rid of your symptoms see a Lyme Literate doctor. It does not mean you have to treat with them but they are the only type of doctor that can rule out Lyme.

  • Amyotrophic lateral sclerosis (ALS)
  • Multiple Sclerosis (MS)
  • Chronic Fatigue Syndrome (CFS/ME)
  • Chronic Migraine
  • Depression
  • Anxiety and Panic Attacks
  • Bi-Polar
  • Any mental health issues
  • Parkinsons
  • Fibromyalgia
  • Alzheimer’s
  • Rheumatiod Arthritis (RA)
  • Lupus
  • Anyother label with no known cause
  • Autism
  • ADD, ADHD
  • Crohn’s and Colitis
  • Anyone with multiple labels

There are many stories of people given these above labels that actually had lyme and have completely healed.

There are causes to all symptoms

Here is a great story of a 17-yr old that was diagnosed as on the Autism spectrum when he was 18-months old. All his issues started after a vaccine. There are many stories similar to his and these stories need to be shared. His mom was a Naturopathic Doctor and was determined to find the cause. She did and now his symptoms are now all gone. TeenLymeHub – Lyme & Autism

I was undiagnosed for 20 years. I had a chronic daily migraine for 20 years and was told there was no known cause and some people just get migraines. I was also told it’s just genetics. Getting the Lyme diagnosis allowed me to treat the causes and heal. Getting a diagnosis sounds great but the healing journey is hell and not one treatment works for everyone. Unless you have Lyme you can’t even comprehend the level of pain and suffering. I was so debilitated that I felt I would soon need a wheel chair to get around. I was not believed by the medical community. I was lied to, bullied, disrespected, given many wrong “diagnoses” and then told by them I just need psychiatric meds. I was also told several times I did not have Lyme.

My 3 main treatments were Hyperthermia in Germany, Ozone Therapy and DNRS by Annie Hopper. You can read my blog for more details. Happy Healing!

Check out the Lyme Cryme video and get the facts yourself.

The Lyme Cryme Video

Chronic Lyme Disease: Life with a Chronic Illness

I recently came across this great video of people describing what it is like living with Lyme Disease.  It’s really hard for “healthy” people to understand and they say..

You don’t get it until you get it.

This is so true.  You can not even in your most vivid imagination comprehend how horrific, debilitating, painful and disabling this disease can be.  This disease is worse than cancer.  Yes it is and here is why:

  • You get zero support from the medical community because our own government denies Chronic Lyme Disease exists.
  • You are told your symptoms are made up and “all in your head”  and you need a psychiatrist.  You can not make up these horrific symptoms!
  • There is no protocol to heal and it is a do-it-youself disease.
  • 90% of treatments are not covered by insurance so you can go broke trying to heal.
  • You can die from Lyme Disease.  Lyme Disease and Co-infections can get into every organ and tissue in your body and can cause everything and anything.
  • Your friends and family may not believe you are even sick.
  • You doctors will tell you you have XXX and say there is no known cause for what you have.   So you are really only getting a name for your symptoms and not a true diagnosis.  

Everyone in this video has Lyme Disease.  They have all received many other wrong names for their symptoms over the years.  A true diagnosis is when you determine the CAUSE of your symptoms.  Please leave any doctors that say you have MS, ALS, Fibromyalgia, Parkinson’s, Chronic Fatigue Syndrome, Chronic Migraines, Alzheimers, Mental Health Issues and anything else unless you are given a cause and treating the cause.  If you are just taking medications to mask symptoms or to slow the progression you are not treating the cause.   

I was misdiagnosed for 20 years.  I was told:

  • some people just have migraines.  
  • oh your mom had some so that’s why you have them.
  • I don’t know why you have a migraine every day.
  • there isn’t a known cause for migraines.
  • it’s a neurological disease.

ALL WRONG!!!  You do not just wake up one day with a migraine and it doesn’t go away for decades.  Just because my mom had some does not tell me why I do.  Just because those doctors didn’t know why I had one doesn’t mean there is not a reason.  

History will look back on Lyme Disease 30 years from now and it will be the biggest lie, fraud and criminal act committed by the medical community ever!

I’ve been sick for 22 years.  I got lyme at least 40 years ago or was born with it and prevention is the only cure.  You must protect yourself every time you go outdoors.  One tiny bite can ruin your life.

Disappearing From Society – a look into Life with Chronic Illness

 

 

 

 

 

 

May is Lyme Disease Awareness Month Blog Post #31 We Are Warriors!

Today is final day of my 2017 Lyme Disease Awareness Month Blog Posts! I think I did more post this month than I’ve done the entire time of my blog.  Not really but it’s been a lot of writing this month.  So I hope you have learned something about this horrific, debilitating and potential fatal disease.  Prevention is the only cure!

Raising awareness is really important because

bracelet silver green 2

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Chronic Lyme Disease exists! 

Millions of people like me are not faking it!  

Please don’t judge us!  

We are fighting an invisible battle that you know nothing about!


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If you suffer from Lyme Disease like I do remember:

You are a warrior!

Your life matters!

You are strong!

You will get better!

#KellyClarkson  What Doesn’t Kill You Makes you Stronger!

STRONGEST PERSON YOU KNOW

By A Migraineur’s Life w/ Lyme Disease

 

 

May is Lyme Disease Awareness Month Blog Post #28: The Do-it-Yourself Disease!

Lyme is a do-it-yourself-disease but what does that mean?

I have blogged about a lot of different information about Lyme Disease this month and there is still more out there but why is it called a do-it-yourself disease?

Basically because everyone with Chronic Lyme Disease has to figure out how to get better by themselves.  

When you start to feel sick you go to your primary care physician (PCP).  When your PCP doesn’t have an answer they send you to a specialist.  When the specialist doesn’t have an answer for you they give up and send you to a psychiatrist because they think your symptoms are “all in your head”.  The main stream medical community just gives up.  

But let’s say you eventually make it to a Lyme Literate MD (LLMD) which most people don’t and you get a diagnosis of Lyme Disease.  Then what?

WOW!

Awesome!

I finally got a diagnosis after 19 years of being sick!

Great!

I feel better now!  

Finally I am validated by a medical doctor!

I finally know why I have had a migraine every day for 2 decades!

I will now get better!

But unfortunately it’s not simple to heal and no one really knows the best treatments for you to heal.  But you want to feel better so you keep going to the LLMD.   You constantly read and research your disease to try and understand it.  

But going to an LLMD isn’t a simple answer.  Every LLMD has a different thought and approach to help you get better because there is not a specific treatment plan to follow to heal.  LLMD’s are not like your regular doctor or medical plan.  If you have problems, questions or side effects to what they have given you can not simply contact them for help.  And since most of the things you buy from are not prescription medications you can not just ask another doctor a questions about it.  

So what do you do?

Basically, you try and take their advice but if you do not research and learn from other Lymies about healing and treatments and detoxing you will not get better!  You will not get better by just following what one LLMD says.  You need to figure out yourself what is best for you.  

I have have been to 3 LLMD’s and I don’t feel any of them really helped me.  Each one had a completely different approach.  After a year and a half I was worse so I had to take matters into my own hands.  I had to decide myself what I felt was best for me.  I decided Germany and my local Naturopathic Doctor.  At this time I am not seeing an LLMD.  

We grow up believing in our medical doctors.  We are taught that they are there too help us and they will help us.  But it is not true.  When you have a disease that is denied by the medical community you have no choice but to figure it our yourself.

 

 

 

 

 

May is Lyme Disease Awareness Month Blog Post #26 Spread the Word!

Lyme Disease is a scary Pandemic!

pandemic

Lyme Disease is one of the fastest growing infectious diseases in the country and most people don’t know anything about it.  Everyone has heard of the Zika virus but that is nothing compared to Lyme Disease.  Look at the difference in cases and funding and remember the estimate number of cases of 329,000 is based on reported cases.  It’s estimated closer to two million.  

Lyme vs Zika funding

The NIH has a larger budget for Headaches than Lyme Disease and the funny thing is most people with Lyme Disease have headaches and migraines.

NIH headaches and lyme

There are more cases of Lyme Disease reported each year then HIV, AIDS and Breast Cancer yet theses disease get a lot more funding and support.  So the only way to get more attention on Lyme disease to hopefully get more funding is for us Lymies to continue to speak out and blog and get others to share our message.  

Here are links to some of my May Awareness Month blogs for you to share.     Just copy and paste the links or share this entire page.

What is Lyme Disease?

The Great Imitator

Symptoms of Lyme Disease Part I and Part II

Mental Health and Lyme Disease

 

 

 

 

May is Lyme Disease Awareness Month Blog Post #23: What about a cure?

Don’t believe anyone (even a doctor) that tells you Lyme Disease is hard to get and easy to cure because that isn’t true.  And don’t believe anyone (even a doctor) that tells you Lyme doesn’t exist in you state because that isn’t true either.  Lyme is every where in the world except Antartica.  Once Lyme Disease is chronic it’s extremely difficult to treat.  See my prior posts about the politics, denial and lies about Lyme Disease if you missed it.


But what about a cure?  

Nope!  

There is no known cure!


If there was a cure for Lyme Disease us Lymies would not be suffering so much.  But the patients are the ones to suffer while the medical community and the government continue to fight over whether Chronic Lyme Disease exists.  It’s maddening!

We suffer in many way:

  • We are told we don’t have Lyme by doctors that are uneducated 
  • We are misdiagnosed and told we have many other diseases that are wrong
  • We are told that all these symptoms are “all in our head” and we need a psychiatrist.  
  • We are denied treatment by our insurance
  • We pay out of pocket for 90% of our treatments 
  • We go broke trying to get better

And the bottom line is that WE JUST WANT TO FEEL BETTER!  We don’t want to spend our lives in bed.  We don’t want to take a million pills and get poked with a million needles.  We just WANT TO BE NORMAL!  We want others to believe us and we want the denial to stop!

So NO there is no cure for Lyme Disease.  

May is Lyme Disease Awareness Month Blog Post #20: Stevia, CBD and Bee Venom Therapy for Lyme Treatment

Stevia 

Stevia is a plant that is used as a sweetener instead of processed sugar.  It’s been reported that Stevia is better than antibiotics in treating Lyme Disease.  

Here’s a few articles about Stevia.  

It seems like more research needs to be done but if you like to sweeten your smoothies it’s not a bad option as a sweetener.  

CBD Oil

CBD oil is the non-psychoactive part of a marijuana plant.  It has been shown to be very helpful in treating many conditions.  You need to forget everything you think about marijuana because marijuana is a plant that has some amazing health benefits.  Yes, some people smoke it just to get high but there are parts of the plant that do not make you high.  So open your mind and read some articles.

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Marijuana Leaf Key Clip


Bee Venom

Here’s a few stories of people that have used Bee Venom to treat their Lyme Disease

From Lyme to Life

ABC News Phoenix

Pioneers:  Healing Lyme with Bee Venom Therapy

Bee Venom Therapy


Definitely some interesting things to consider.  When you are debilitated with Lyme Disease you really become open and deparate to try any method to heal.  Something may seem crazy but if it may help you get better it might be worth a try.  I feel everyone has the right to decide what treatment is best for them.  You know your body the best and you know what you are comfortable doing.  

I’d love to hear from anyone that has tried Stevia, CBD Oil or Bee Venom Therapy and what your results were.