I recently came across this great video of people describing what it is like living with Lyme Disease. It’s really hard for “healthy” people to understand and they say..
You don’t get it until you get it.
This is so true. You can not even in your most vivid imagination comprehend how horrific, debilitating, painful and disabling this disease can be. This disease is worse than cancer. Yes it is and here is why:
- You get zero support from the medical community because our own government denies Chronic Lyme Disease exists.
- You are told your symptoms are made up and “all in your head” and you need a psychiatrist. You can not make up these horrific symptoms!
- There is no protocol to heal and it is a do-it-youself disease.
- 90% of treatments are not covered by insurance so you can go broke trying to heal.
- You can die from Lyme Disease. Lyme Disease and Co-infections can get into every organ and tissue in your body and can cause everything and anything.
- Your friends and family may not believe you are even sick.
- You doctors will tell you you have XXX and say there is no known cause for what you have. So you are really only getting a name for your symptoms and not a true diagnosis.
Everyone in this video has Lyme Disease. They have all received many other wrong names for their symptoms over the years. A true diagnosis is when you determine the CAUSE of your symptoms. Please leave any doctors that say you have MS, ALS, Fibromyalgia, Parkinson’s, Chronic Fatigue Syndrome, Chronic Migraines, Alzheimers, Mental Health Issues and anything else unless you are given a cause and treating the cause. If you are just taking medications to mask symptoms or to slow the progression you are not treating the cause.
I was misdiagnosed for 20 years. I was told:
- some people just have migraines.
- oh your mom had some so that’s why you have them.
- I don’t know why you have a migraine every day.
- there isn’t a known cause for migraines.
- it’s a neurological disease.
ALL WRONG!!! You do not just wake up one day with a migraine and it doesn’t go away for decades. Just because my mom had some does not tell me why I do. Just because those doctors didn’t know why I had one doesn’t mean there is not a reason.
History will look back on Lyme Disease 30 years from now and it will be the biggest lie, fraud and criminal act committed by the medical community ever!
I’ve been sick for 22 years. I got lyme at least 40 years ago or was born with it and prevention is the only cure. You must protect yourself every time you go outdoors. One tiny bite can ruin your life.