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May is Lyme Disease Awareness Month Blog Post #29 The Financial Cost of Lyme


Having Lyme Disease is a huge financial burden.  I’ve mentioned before that 90% of treatments to heal from Lyme Disease are not covered by insurance.  So what does it cost to have Chronic Lyme Disease?

Obviously, if depends on what you can afford.  We pay medical premiums for years hoping to never need care but when you have a disease that is denied by the CDC your insurances will not reimburse you anyways.  

Lyme Literate MD’s (LLMD) are expensive:  When you make an appointment for a LLMD you must pay 1/2 of of the visit cost up front.  YES!  REALLY!  No co-pays!  So, where I live LLMD’s are around $600 for your first visit.  So when you make the appointment you have to pay $300 on your credit card.  If you are too sick to make the appointment and you have to cancel you are out $300.  

At my first visit the LLMD wanted to run a lot of blood tests to confirm I had Lyme.  She highly suspected it but wanted to confirm.  Those blood test was around $1,200. Payment up front and you can try and get money back from your insurance later.  Good luck!  

Then they recommend more testing at further visits, prescriptions and about 15 supplements at each visit.  Then every 3 months when you see them again it is around $450 for 1/2 hour and more testing is recommended and more supplements. 

  • LLMD First Visit:  $600
  • Lyme Testing over $1,000
  • Second Lyme Visit and future visits $450 for 1/2 hour
  • Supplements at each visit $100 to $500
  • Other testing $300 to $800
  • Prescriptions costs depend on your medical plan

So after one year you are basically out of pocket or in debt just for doctor visits around $2,000 and testing and supplements they recommend another $1,000-$3000.  Then prescriptions if you get any.  Most Lyme treatments are considered alternative therapy and not covered by insurance but you must do alternative treatments to heal.  These alternative treatments may be necessary for years and years. 

Some doctors recommended regular infusions or they tell you do other testing outside of their office or other therapies on your own.  Most of us have pain pain and spend a lot of money trying alternative solutions to get off opioids.   If you are like me, you end up in the ER a lot and those co-pays add up too. 

  • Vitamins and minerals
  • Probiotics
  • Genetic testing for Lyme and Mold is recommended
  • Inflammatory marker blood tests are recommmend
  • Organic food
  • Epsom Salt Baths
  • Magnesium baths
  • Coffee Enemas
  • Medical Marijuana if you want help with pain or sleep without prescription drugs
  • Mold testing for your home
  • Removal of amalgam fillings
  • Lymphatic system support like dry brushing, rebounding and massage
  • Ozone treatments 
  • Naturopathic appointments
  • Heavy metal testing and chelation treatments 
  • Special things to take when herxing
  • Talk therapy to help you deal with all of this
  • Supportive drops and herbs to take daily
  • Check out my list of stuff here.

Now, think if you are on a limited budget and had to pick and choose what tests to run and which supplements to buy to try and heal.  Because you don’t know what may help and you are so desperate to feel better you can go broke trying everything recommended.  


I do understand why some medical professionals think LLMD’s are a scam.  Most MD’s don’t believe in alternative treatments so if it’s not a prescription drug they think it’s a joke or scam.  So when people who are so sick keep buying stuff from LLMD’s and get sicker and sicker or take years to get better they don’t believe they are legitimate doctors.   LLMD’s are MD’s with added training to consider themselves Lyme specialists.  But when Chronic Lyme Disease is denied by our government and doctors don’t believe it exists of course they think LLMD’s are a scam.


Personally, I think our entire medical system in this county is disgusting.  Our government wants to keep us sick.  They are drug pushers because that is where the money is.  Fibromyalgia was not considered a disease until a drug company came up with drugs to help people.  Funny thing is most don’t work.  Gotta wonder if people really have Fibromyalgia.  Come up with a name for symptoms, make a drug for it and yes, you have a legitimate disease.  Don’t get me wrong, I believe the suffering is real!  The pain is real!  Of course I believe anyone that says they have pain because I’ve been a chronic pain sufferer for 21 years.  


Big Pharmaceutical companies are all about making money and not about healing and helping people.  Researching and developing drugs is not about helping people it’s all about money.  CDC people are tied to big pharma and make decisions based on how much money they will make or lose.  Big pharma can charge huge amounts of money for a drug just because they can.  Some of the same drugs we pay thousands of dollars for are cheap in other countries.  Same with insurance companies.  Deny, Deny Deny is their policy.  They are focused on the bottom line not about getting people healed.  

I could go on and on about out horrible medical system and discuss the pros and cons of the  Affordable Care Act (Obamacare) or the potential American Health Care Act but it’s not worth it.  The bottom line is millions of people are suffering in this county and nothing is being done about it.  

It’s maddening!

So I’ll leave you with this to think about:

Oncologists make money from Chemotherapy drugs!  Yes, Chemotherapy drugs are the only drug in this county that doctors can resell for a profit.  That is why they push cancer patients on chemo.  When you get cancer you fear the worst so oncologists push chemo at your fear.   Talk about a scam.  Cancer doctors are against  natural treatments and push chemo because there is a lot of money to be made.  And there have been studies that show 97% of chemo does not work.  So if you think LLMD’s are a scam then you have to agree that oncologists are scammers too.

 

 

 

 

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