Lyme is a do-it-yourself-disease but what does that mean?
I have blogged about a lot of different information about Lyme Disease this month and there is still more out there but why is it called a do-it-yourself disease?
Basically because everyone with Chronic Lyme Disease has to figure out how to get better by themselves.
When you start to feel sick you go to your primary care physician (PCP). When your PCP doesn’t have an answer they send you to a specialist. When the specialist doesn’t have an answer for you they give up and send you to a psychiatrist because they think your symptoms are “all in your head”. The main stream medical community just gives up.
But let’s say you eventually make it to a Lyme Literate MD (LLMD) which most people don’t and you get a diagnosis of Lyme Disease. Then what?
I finally got a diagnosis after 19 years of being sick!
I feel better now!
Finally I am validated by a medical doctor!
I finally know why I have had a migraine every day for 2 decades!
I will now get better!
But unfortunately it’s not simple to heal and no one really knows the best treatments for you to heal. But you want to feel better so you keep going to the LLMD. You constantly read and research your disease to try and understand it.
But going to an LLMD isn’t a simple answer. Every LLMD has a different thought and approach to help you get better because there is not a specific treatment plan to follow to heal. LLMD’s are not like your regular doctor or medical plan. If you have problems, questions or side effects to what they have given you can not simply contact them for help. And since most of the things you buy from are not prescription medications you can not just ask another doctor a questions about it.
So what do you do?
Basically, you try and take their advice but if you do not research and learn from other Lymies about healing and treatments and detoxing you will not get better! You will not get better by just following what one LLMD says. You need to figure out yourself what is best for you.
I have have been to 3 LLMD’s and I don’t feel any of them really helped me. Each one had a completely different approach. After a year and a half I was worse so I had to take matters into my own hands. I had to decide myself what I felt was best for me. I decided Germany and my local Naturopathic Doctor. At this time I am not seeing an LLMD.
We grow up believing in our medical doctors. We are taught that they are there too help us and they will help us. But it is not true. When you have a disease that is denied by the medical community you have no choice but to figure it our yourself.