Unfortunately, I have a disease that is denied by the CDC and most medical doctors. But the people who deny that Chronic Lyme Disease exists have NO other answers for people who suffer with bizarre and debilitating symptoms except that they make it up.
How is it possibly the so many people have the same bizarre and debilitating symptoms and EVERYONE is making it up? It’s not possible! You can not make up these symptoms. And the denial of the CDC and the medical community is killing people.
Different organizations have completely different thoughts about Lyme Disease.
CDC and the Infectious Disease Society of America (IDSA): They believe Lyme Disease exists but that it is hard to get and easy to treat. The CDC states “Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics.” So after a few weeks of antibiotics they think you are “cured”. The medical doctors follow treatment guidelines from the CDC so if you get a rash (which remember most people don’t get) you get a few weeks of antibiotics and you are done. And, insurance companies follow these treatment guidelines too. So, after a few weeks of antibiotics they stop covering the antibiotics and deny any further treatment. The CDC goes on to say that in a small number of cases those few weeks of antibiotics don’t work and you are now considered to have Post-Treatment Lyme Disease. So what about the people that don’t remember a tick bite? Well, you are basically out of luck or screwed.
International Lyme Associated Disease Society (ILADS): So ILADS basically says that there isn’t proof that a short course of antibiotics will “cure” Lyme Disease. And, believes that Chronic Lyme Disease exists. They believe that long-term treatment may be necessary to get patients symptom-free. They believe that infections can still persist in the body and cause long-term effects even after a course of antibiotic treatments. There is proof that Chronic Lyme Disease does exist.
But the medical community follows the CDC guidelines for treatment so many patients get no help when their doctors give up on them after they have had the normal course of antibiotics even though they have lingering and debilitating symptoms.
What does a patient do when they are still sick, incapacitated, unable to function and can’t get out of bed or even walk? The patients go see Lyme Literate MD’s.
What is a Lyme Literate MD? Basically, these are medical doctors that specialize in Lyme Disease. ILADS has physican training programs to better help physicians help patients that have Chronic Lyme.
Why does the CDC Deny Chronic Lyme Disease exists? Basically, the CDC has a committee that decides treatment guidelines for Lyme Disease. The problem with the people on the committee is that most of them have ties to big pharmaceutical companies or insurance companies. Pharmaceutical companies develop drugs for diseases and they make a lot of money doing it.
So you have to follow the money. 💰💰💰💰💰💰💰💰💰💰💰💰💰💰💰💰
If people who are diagnosed with Fibromyalgia are now diagnosed with Lyme Disease then all the drugs for Fibromyalgia won’t be prescribed as much. That would mean less money for the pharmaceutical companies and the people who own them.
Years ago, before Fibromyalgia drugs doctors did not believe patients pain. But when the drug companies came up with drugs to help people with pain they finally believed Fibromyalgia was a really disease. The problem with Fibromyalgia is that a very small people percentage of people actually benefit from the drugs. So, maybe they really don’t have Fibromyalgia? The medical community acknowledges that they do not know what causes Fibromyalgia pain but they can give a diagnosis to make a patient happy.
I did not accept the Fibromyalgia diagnosis I was given. I tried all the Fibromyalgia drugs and they did not work so I starting questioning whether Fibromyalgia was really the correct diagnose.
**You have to question your diagnosis when the drugs to treat a condition that a doctor says you have don’t work.**
Ask your doctor WHY you have the pain or symptoms you have and see what they say. Because if you do all the tests and they come back negative and you still have pain they do not have answers for you.
Think about the people who have ties to insurance companies. If you state that Lyme Disease is hard to get, easy to treat and it only requires a short course of antibiotics then insurance companies don’t have to pay as much. Insurance companies follow outdated guidelines and are told that Chronic Lyme Disease doesn’t exist so they are able to deny long term treatment.
The medical community has treated me horrible for 21 years so I have no trust in them what so ever. Every time I go back for a new pain or symptom I am always disappointed. They run tests and come up with nothing so they give up on me. Our medical community is backwards. They never try and determine the cause of your symptoms. Why? Why? Why? Because they are not trained to do that. That is why I continue to work with a Naturopathic Doctor.
To be continued………………………..