May is Lyme Disease Awareness Month Blog Post #5 What are Symptoms of Lyme Disease, PART I?

Lyme Disease can effect all parts of your body so it can have a wide range of symptoms.  It can get into your brain, joints, heart, lungs, muscles and nervous system.

Symtpoms MEme

First symptoms of Lyme Disease:

  • Bulls eye rash called erythema migrans which most people don’t get.
  • Flu-like symptoms which disappear and then the infection becomes dormant

Some early symptoms may also include fatigue, fevers, joint pain and sleep problems.  But everyone with Lyme is different.

Chronic Lyme or Late Stage Lyme Disease is when the infection is no longer dormant and has invaded the body everywhere and then finally more symptoms appear.  This is where the list of symptoms become endless.  They say Lyme will become full blown when a person goes through a major traumatic event in their life.  That’s what happened to me.  I believe I got Lyme when I was young because I have many illnesses my entire life.  And, I believe the Lyme really appeared when my mom got diagnosed with cancer and 6 months later died because that is when my migraines,  depression and constant nausea started.  

My Symptoms of Lyme Disease:

  • Migraines – Daily
  • Migratory joint pain.  It means you have pain in your joints that jumps around to different joints.  Sometimes it feels like someone is ripping your joint open and then the next day it’s a different joint.  
  • Burning Pain – Feels like your body is on fire.  It’s all over.  Arms, palms, hands, fingers, legs, calfs and bottom of feet.
  • Nausea and vomiting
  • Tremors  – really bad neurological problem that causes your body to shake.  It is especially bad when the burning pain is bad.
  • Muscle aches
  • Electricity shooting pain.  This is horrific!  I feel like someone has plugged my body in an outlet.  
  • Insomnia.  Trouble falling asleep and constantly waking up in the night. 
  • Crippling Pain in hands, fingers and legs.  It feels like my hands and legs have stopped functioning and I can’t hold something or walk at times.
  • Severe anxiety
  • Depression
  • Eye Twitching
  • Mood swings and irritability.  Seems worse with more pain.
  • Severe fatigue
  • Low grade fever
  • Memory loss and forgetfulness
  • Brain fog
  • Stomach pain and cramps
  • Breathlessness called “Air Hunger” which feels like you can’t get oxygen in.  Very scary.  You become completely out of breath just going from your bed to the bathroom.  Having your own pulse oximeter helps you relax and make sure you are getting enough O2.
  • Hearing problems
  • Panic attacks
  • Itching – mostly head, ears, eyes and face but sometimes all over body itching.
  • Heart murmur 
  • Light and sound sensitivity
  • Lightheadedness
  • Neck pain, stiffness and cracking
  • Poor concentration
  • Sparklers shooting at my hands, arms and legs.  Feels like someone is holding a sparkler near me and the sparks are sharp when they hit me.
  • Weigh gain
  • Thyroid problems
  • Overall body weakness
  • Chronic dry lips
  • Digestive issues or upset stomach
  • Chronic chest cough
  • Anger
  • Constant nasal issues and allergies
  • Sweating.  This could be day or night sweats.
  • Rage
  • Menstrual and PMS problems
  • Sleep paralysis and nightmares
  • Teeth grinding
  • Sensitivity to heat
  • Ear pain
  • Facial Paralysis.  Luckily I’ve only had this once.
  • Tingling.  Sometimes I get random tingling in different parts of my body.

So those are just my symptoms but the list goes on and on of the different type of symptoms a person with chronic Lyme Disease can have. 

Here is a Lyme Symptom Checklist that Dr. Joseph Burrascano created to help see if someone has Lyme Disease.

Here is aan MSIDS Questionnaire by Dr. Richard Horowitz to evaluate if you have Lyme Disease.

The Lyme Research Alliance also has a good symptom checklist

Remember even if you don’t test positive for Lyme Disease you still may have it.  A clinical diagnosis can be made by a Lyme Literate MD.

Previous Posts in this Series

May is Lyme Disease Awareness Month Blog Post #4   The Great Imitator

May is Lyme Disease Awareness Month Blog Post #3 What is Lyme Disease?

May is Lyme Disease Awareness Month Blog Post#2: Prevention is the only cure!

May is Lyme Disease Awareness Month Blog Post#1 Lyme Disease Awareness Month Begins



1 thought on “May is Lyme Disease Awareness Month Blog Post #5 What are Symptoms of Lyme Disease, PART I?

  1. Pingback: Lyme Disease Awareness 2018 – A Migraineur's Life with Lyme Disease & CIRS

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