Lyme Disease

Opioid Painkillers & Chronic Pain

We have a HUGE problem in this county with people with chronic pain.  The result can be an accidental overdose, dependency or addiction.  Let’s find answers to all the millions of people with chronic pain and stop treating them as drug seekers.  Stop limiting opioid painkillers for people that legitimately need it. That is not solving the problem.

It’s horrible when an accidental overdose of pain medications happens, or a chronic pain patient commits suicide because they have no where else to turn, or a person with chronic pain becomes dependent on opioids or when a person becomes an addict.  It’s just horrible but there is so much more to the chronic pain epidemic we have in this county.

  1. Chronic pain is not handled well at all within our health care system.
    • Some doctors and nurses don’t believe the pain is real.
    • Some Psychiatrists think the pain is “all in your head”
    • Some diseases/illnesses are not considered legitimate.
    • CDC lies about diseases and other health issues
    • Most medical doctors treat symptoms only.  Most don’t try to get to the cause of your pain.
    • Many medical professionals believe alternative treatments are quack doctors scamming patients.
  2. Most “alternative” or natural painkillers don’t work for people with chronic pain.
  3. Most people are not addicts so stop assuming that everyone who needs help with pain is an addict when they go to the ER.  An ER visit is horrible enough.
  4. Alternative or natural treatments are not covered by insurance so most people can’t afford to try them.  So they have no choice but to go to an MD and possibly suffer consequences.
  5. Some medical doctors treating Lyme patients have lost their license even though their patients were getting better.

I really try and limit my use of opioids but some days when the pain is unbearable I take it. And as most of you know, I do MANY alternative and natural things to try and get rid of my illnesses and pain. I know long term-daily opioid use can make your pain worse but somedays it’s necessary.

Making it more difficult for someone in pain to get medication isn’t solving the problem.  Making people feel like they are drug seekers isn’t solving the problem.  And cutting off medication from people who just have had surgery is so wrong.  Why should someone be made to suffer unnecessarily?

Check out this article about a women made to suffer  @NikiLeith @XOjane

Check out the New Jersey Emergency Room Article They will no longer give opioid pain medications at this hospital.  I can tell you based on my experience Stanford Hospital doesn’t either.

Here is what you need to know about Chronic Pain

  • We ARE NOT making this up. Our pain is very real.
  • We DO NOT want to live like this.
    • We are regular people like everyone else.
    • We can only imagine and hope for a life without pain.
    • We would give anything to feel normal again.
  • We did not do anything wrong to deserve a life of constant pain.
  • We try very very hard everyday to accomplish every day tasks that the rest of you take for granted.
    • Getting the the grocery store, cooking dinner, making beds, feeding the pets, vacuuming, unloading the dishwasher, paying bills, remembering appointments are EXTREMELY difficult.
    • Driving to doctors appointments is really hard.
  • Socializing with family and friends can be stressful because when you plan an event you never know how you will feel when that day arrives.  Committing to be somewhere and having to cancel at the last minute makes you feel horrible.   Once again you feel you have let everyone down.  But if we just need to lay down in one of your rooms for a bit then let us.
  • Remember that just because someone feels fine one minute doesn’t mean that can’t change the next minute.
  • We may be able to walk a bit one day but not the next.
  • Having to leave events because you are to ill to stay or need to be taken to the ER is embarrassing and emotionally draining.
  • We may feel like a burden to our family but we don’t want to be a burden to anyone.
  • We don’t want to complain constantly because who wants to be around someone who complains all the time.
  • We try not to be negative but sometimes the pain gets the best of us.
  • We pretend and to try and look normal even thought we feel like crap.  But we can only pretend for so long.  Just because we look fine to you doesn’t mean we feel fine.  We learn to fake it!

Here is what can help someone with chronic pain

  • Email, text, or pick up the phone and call just to say hi.
  • Offer to listen to them without judging their treatment methods.
  • Offer advice without being pushing.  Don’t say you have to do this or that or your not going to get better.
  • Take them grocery shopping when you are planning on going anyways.
  • Don’t even ask to help with chores, just come over and do it.
  • Don’t ever be upset that someone has to leave early or cancel last minute on a planned event.  No one wants to do that.  We want to go back to how life was before our chronic pain. We want to get out of our house.
  • Support their dietary needs and choices.  Many of us have foods that make us worse so don’t push if someone says I can’t eat that dessert.
  • Help with their kids.  Even just taking them for an afternoon can be a nice needed break for someone.
  • Educate yourself on their illness and feel free to ask questions and share what you have learned.

I can’t even tell you how many time I have a level 7-8+ migraine and taught an aerobics class, stayed in an meeting when I was ready to puke, went to dinner or stayed at family events when I was about to pass out.  I have learned and I don’t do that anymore.  I have learned to say NO and put myself first.

When you have a chronic illness you need to be selfish.  You need to take care of yourself first.  You know on flights when they say to put on your oxygen mask first before your child.  You are no good to your kid if you don’t get oxygen.  So probably for the first time in your life PUT YOURSELF FIRST.  It’s hard to do because we always want to be seen as strong and that we can handle anything.  We also feel that we will be judged if we stop and take care of our needs.

Well let me say this to all the other people with chronic pain  







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